It’s been a minute since I have been in the #mastodon world.
I was diagnosed with stage 2 grade 2 clear cell renal carcinoma. I’m 32 years old and soon to be 33. I was given the “go home and don’t come back convo” from my oncologist which is great.
My first scans on May 31st were clean, and my next ones are October 31st. Would love to connect with other #cancer folks here if there are any.
If this doesn’t apply to you, that’s fine, but boost if you can ❤️👏🏻❗️
@sidsadler
Congratulations!
My husband was diagnosed with Hodgkin's Lymphoma at 29 and did chemo and radiation. Next year we'll celebrate 30 years of remission.
KICK ITS SORRY ASS!
Had renal cell carcinoma a decade ago. Multiple tumours.
One partial nephrectomy later, I feel fantastic.
Fuck cancer. You got this.
@sidsadler breast cancer. stage 1 but type A, so the rabid kind. partial mastectomy. had to go thru the hell of chemo and radiation. got COVID in between that hell.
if you look at #fuckCancer, you'll find a lot of my posts about my journey on there. coincidentally, started physical therapy today. have a year to go of immuno.
Congratulations!
@sidsadler Hi Sid,
Throat cancer 2006. Without surgery life expectancy measured in days. Under 20% survival rate past 5 years. Pronounced clean after 7 or 8 years.
Kidney cancer 2016. Survived, and also clean now.
No worries.
Kind regards
Robert WT
Congratulations!
I'm a cancer survivor. Over 3.5 years in remission from a PCNS lymphoma. I 48 when I was diagnosed. Not "a young adult" anymore, but this cancer generally afflicts people in their 60s and 70s.
I still get MRIs every 6 months to make sure the bastard does not come back.
@sidsadler I'm a stage 3 larynx survivor (so far), out of treatment almost 3 years.
These are the things I learned after finishing chemoradiation that I had refused to believe until I investigated and found out they were true:
Oncologists can get commission for using/prescribing from big pharma;
Opiates can cause metastasic cancer, so stop taking them asa;
Needle biopsies can "seed" cancer.
It's crazy what they don't tell us up front! Happy healing!
That was great news for you Sid! My experience is similar but different. I am much older and was diagnosed with stage 4 Lymphoma, in October 2023. Fully expecting to pop off, it was amazing to me that the doctors reassured me that they are aiming for a cure! After 6 months chemo, I am in complete remission. The chemo was nothing like I expected and I tolerated it well. The NHS staff were amazingly caring, friendly and understanding. So good to hear your story. Welcome to Masto! 😊
@lauriekay9 thanks for all these kind words:) I have quickly picked up the passion of advocacy work in the kidney cancer field as well:)
I had a therapist for a while before my diagnosis and I have kept her. While she’s not a cancer specific therapist, she has made the transition well I believe 🤷🏻♂️
I'm no spring chicken at 74 YOA, but I was disgnosed with adenocarcinoma of the prostate about 18 months ago via an MRI scan and a needle biopsy. The hospital in Luxembourg where I am being treated or rather monitored as no treatment has been suggested at this stage, is a centre of excellence for this particular type of tumour (reassuring that). The verdict of my urologist and of the cancer committee who revieve all cancer cases at that hospital is that at this stage, no treatment is indicated or required other than 'watchful waiting'.
This is fine by me as most interventions for this type of tumour involve a high risk of rather undesireable side effects that include, faecal incontinence, urinary incontinence and impotence!
@box464 love to hear this! Yes I got “lucky” with mine. Being the size it was we assumed stage 3 or a higher grade or something…
I saw a kidney cancer specialist oncologist who is one of the top in the field and it was nice hearing from him “you can go home and forget about and just get scans”
@sidsadler Sounds like great news!
It can alter how you look at things, make you more determined about others. Humour can help, I nearly went in with Mickey Mouse ears drawn on the site of the lump to get my results, as it could have been just a moveable lump (known as a mouse), sheer bloody mindedness is also good.
I was 28 with grade 1 breast cancer, knew when I found it, as we have family history. Hormone treatment and radiotherapy. Still have annual scans, but now a 40-something.
Well Sid, I think that I can understand. I had lung cancer. Just passed my five year mark in June. I still have scan anxiety. I've come to the conclusion that it's normal.
It's a good feeling when you come out of active treatment, isn't it. Welcome to my world.
I have an unexpected blot on my left kidney, per ultrasound. Quite startling; the scan was at about 11 am on Wednesday, and the GP's surgery phoned saying "We should talk" before 2pm. Junior doctors (including most GPs) were striking that day, and my GP was on holiday. I conclude there is some urgency. I am not really surprised, as I've had intermittent pain there for a while. Further scans will follow, when the (overloaded) NHS can do it. Then we will know how best to proceed. 1 of n
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