Paul Chambers🚧

I have #ParkinsonsPlus, #MultipleSystemAtrophy ( #MSA ) with severe autonomic dysfunction

I understand a lot of doctors treating #LongCovid don't understand #dysautonomia's, esp POTS

Speaking as a long-time sufferer, for #POTS they really should look at using #Pyridostigmine (brand name #Mestinon

It has been the best relief I've received in the past decade

The quality of my life improved after I started taking Mestinon

Significantly decreased my syncope and pre-syncope. #MedMastodon

Mar 6, 2023 at 4:50amWeb
Show threadBart GrahamMar 12, 2023
@paul Thanks for that tip Paul. I just had my first episodes of #syncope at age 63 due to #hEDS. I believe that this was a problem when I was in school and university but hadn't dealt with it since. I believe my issue is related to being dehydrated. So much to learn!