serenebabeEven though the medication I take knocks out part of my immune system, specifically making me more at risk for upper respiratory infections, I’m not mostly afraid of Covid. I‘m afraid of #LongCovid. I just can’t deal with the idea of another chronic illness. That’s part of why I’m one of the only people I know who is still masking, and still drastically limiting the amount of time I’m with other people inside.
I’d like to say my motivation is more altruistic, that it’s concern for other people. And it is partly that. But people who don’t live with chronic disease clearly don’t understand how devastating it is to live with serious symptoms every day.
rainbowreckoner 🏳️🌈 🤔@serenebabe I feel this deeply. I also feel like people without chronic illness believe many myths about what would happen if they were to become #disabled: employers, friends & family would believe & accommodate them; the systems in place would protect & support them; appropriate care would be available and accessible to them; they could "overcome" their disability.
Disabled people (and those who listen to the disabled community) know better.
@rainbowreckoner yes yes yes, so true.
Autoimmune Community Institute@rainbowreckoner @serenebabe No one is coming to save them. They realize this when it's too late.
ottoflux@serenebabe still making here with my kids too. it’s so frustrating that hardly anyone else does anymore — especially at their school.
we finally got hit with it in september when my youngest was infected at school, her immune system is still reeling a bit and most days i still need a nap to make it through. (and i hate naps)
we finally got hit with it in september when my youngest was infected at school, her immune system is still reeling a bit and most days i still need a nap to make it through. (and i hate naps)
Belle (she/her)@serenebabe YES! I think a lot of folks I know with #ChronicIllness feel the same. Personally, I’ve already got POTS and chronic pain from my hypermobility…I really don’t think I can add another set of symptoms and still function. Life is hard enough already.
@RavynWitch exactly! ❤️
Mrs. Right@serenebabe I'll be the other one in the grocery store wearing a mask. I know someone suffering greatly with Long Covid, a true life changer in her case, and I don't want to catch so much as even the common cold!