one of these days im going to talk about how the idea of discrete, neatly identified, clearly seperate neurodivergencies as defined by diagnostic manuals does a lot of harm to people trying to figure out their brains.

"am I REALLY autistic or am I only VERY MUCH LIKE autistics?" should be a question as unnecessary as "am I REALLY gay or am I only having all the same experiences as gay people"

but here we are, in a world where both these things have been medicalised and separated from the person, which is seen as somehow an entity separate from all the worldly failures of their body and mind... which all feels like a very christian idea of a "soul", a core of a person that can be freed from everything that society thinks is wrong with it

in queer identities, we have fought for the space to embrace chaos. unclear identities. changing your mind. changing as a person. mixing and matching words until something sounds right.

that is where we have to get with neurodivergencies.

"but you can't become ADHD later in life!"
"you can't be 'a little bit' borderline!"

and, pray tell, why the hell not? every argument for this is a tautology. because that's how we have defined it. not long ago it was impossible to be both ADHD & autistic

as we turn to embracing #neurodiversity we need to fucking stop letting an oppressive system staffed by vile individuals define how we are allowed to identify ourselves.

and, what's more, we need to stop letting them get away with tying our allowances for supports and accommodations to their catalogue of stigma (also known as the DSM).

this is bullshit, has always been bullshit, and I am tired of putting up with the bullshit

I think, as a summary, what I'm getting at is:

1. it's more important to find your PEOPLE than to find the WORDS.

2. it's more important to get the help you WANT and NEED than to have someone tell you "what's wrong with you".

3. diagnostic manuals do not reflect human experience.

@skye

The last line gets me every time.

Please, don't confront me with my failures
I have not forgotten them

https://youtu.be/0_z_UEuEMAo

Nico - These Days

YouTube

@skye Hell. Yes.

All of this.

Brains are not simple. Bodies are not simple. Reality is not simple. I really wish the world would learn to quit trying to make everything simple.

Clean, organized taxonomies of existence are violence, full stop.

@skye This is helpful. My brain certainly seems to have done its best to develop ADHD later in life; I'm just missing a small amount of common experiences that may not even be so common among primarily-inattentive types.
@puddleofchaos like there are SO MANY things that can change the layout of the brain and the way it works.
@skye Makes sense. And there's so much we just don't *know* about the brain in the first place!

@skye
This is an awesome thread, thank you. I’m 62 years old, and I’ve been “different” my whole life. I can relate to a lot of the neurdivergent creators, but I honestly don’t even know where to start. I went to (employer provided) therapist, but I’m awkward and I don’t have the words to express what I need to share.

I don’t mean to vent all of this here, this thread just really spoke to me.

@nonie3234 you're fine, and I'm glad you found your people at last 💚 that's so much more important than the words
@skye
The ADHD and Autistic creators on TikTok have actually been super helpful. I feel much less like I’m the only one, plus they have some great coping tips. Like you said, sometime the labels they use are conflicting, but the feelings and behaviors are spot on.
@skye Well, this does actually explain a lot. I always wondered where this idea of the brain and the rest of the body being separate entities comes from (mostly regarding gender, but I have those talks mostly with people who are nonbinary and neurodivergent, so that's telling). So that's another Christian bias thing the society should unpack to prevent suffering. (Overall, great thread.`

@skye I agree. Many of the supports are going to be the same no matter the cause. But I do think someone who avoids people and loud noises due to PTSD might have some needs that are different than a person who avoids those same things because of autism.

The key thing here would be getting everyone support and accommodations no matter the reason. Unfortunately, we're a long way from that. So I am a fan of doing whatever is necessary to get support, despite what the experts want to label people.

@towthelion sorry im too tired to explain how you're entirely missing my point but you are and you should know that
@skye okay, thank you for saying that much. I will try to reread with a different lens.
@skye wow hello new friend
@pandemoniumcrutch making friends over our shared hatred of the psych system 😂
@skye thank you for this thread. i’ve been questioning if i’m autistic a year after i was diagnosed with adhd, and there doesn’t seem to be anything clear cut from my symptoms/behaviour that defines it. but i know there’s something other than adhd. it’s important for people who are self-diagnosing to have that gray space to explore who they are, if that makes sense.
@skye You really get asked questions like that? Seriously? Wow, I'd never consider asking anyone 'How far along the spectrum are you?" People are asshats sometimes.
@skye Yeah, I know that all too well. So damn glad to have finally broken out of that mentality and became more understanding and accepting of my autism and how my brain works. I felt a lot better since then

@skye i've been thinking about how the ace and aro communities that I'm in seem to take a more open approach to this than like a lot of queer groups. And maybe it's related to being excluded from so many things?

But basically like, being totally chill with the idea that people can be ace for a period of time or as a result of trauma and it doesn't invalidate other ace folks. Or like do you think you've experienced romantic attraction but you relate to the aromantic label? Go for it!

I know some people are still hesitant to fully claim ace or aro and may say that they are ace or aro spectrum instead but yeah for me if someone is experiencing some of the same things I am, fighting against the same harmful norms, relates to those experiences, I'm not gonna police who can identify as asexual or aromantic.

And maybe that's not a wider ace community thing? I don't know but it's something I've noticed in my conversations

@skye and yeah I totally agree about neurodivergences and the DSM and stuff, I just didnt comment about that because you already said it so well lol

I'd love it if we could have new community created language to talk about our unique experiences that wasnt so based on rigid ideas like the DSM

@skye this is sooooo great, I love this. totally agree. in the end it's just learning about yourself and managing your symptoms, yeah?
@skye Thank you for writing this out, even though maybe I should know it, it's helpful for me to actually read it
@skye A bad diagnostic description of gender dysphoria kept me from seriously considering I'm trans for 18 years 😑​
@skye Like seriously I looked it up back in 2004 and I coulda found out then but nah
I did not meet what was described 😔​
@Staren @skye yeah i've wanted to be on hrt since about then (still don't care what i "am") but i knew i wouldn't fit the boxes/gatekeeping so i just... didn't