Cynthia AdinigNov 22, 2022
Hello to all my fellow #LongCovid and #mecfs advocacy orgs and advocates here. Brief intro. I'm a black long covid advocate from the first wave and mom of a genius long Covid kid. Still recovering. POTS, MCAS, EDS, and who knows what else. I'm always fighting the good fight in disability and equity often with just my keyboard. I'm knee-deep in policy, legislation, research and writing. Feel free to follow me. #longcovid19 #longcovidKid #longhauler
Show threadMorgan DawnNov 22, 2022

@CynthiaAdinig

Hello, I also have EDS. Weak wave from my corner of the internet

Show threadCynthia AdinigNov 22, 2022
@morgandawn my wrists feel this comment so much. Lids that screw on are my daily arch nemesis😅
Show threadMorgan Dawn

@CynthiaAdinig My first wrist #subluxation was trying to open a Dijon mustard jar. Since then, mustard jars have been on my #nemesis list. The list expands every year. These foes are wily and can circumvent many assistive devices and power tools. Be on the lookout!!

#EDS #hypermobility

Nov 22, 2022 at 8:24pmWeb
Show threadCynthia AdinigNov 29, 2022
@morgandawn my son's daily arch nemesis is a Gatorade lid. It feels good to be able to actually open it for him and show him the things I learned, after spending my childhood using pliers and scissors on various lids while being judged by my family who all have EDS but somehow didnt struggle with lids.