andrea patrice
Here’s today’s #HeadwrapOfTheDay! Currently reclining after breakfast and sipping coffee through a straw because my body is losing the fight with gravity these days due to #orthostaticintolerance. It’s amazing that only 4 years ago I was doing 12-hour shifts as a nurse & now I can only stand up for about 30 seconds before gravity forces me back to the earth. I wish I had known about #MECFS when this all started in 2014- they certainly didn’t teach us about it in nursing school. #pwME #NEISVoid
Nov 20, 2022 at 9:09amWeb
Show threadalex  Nov 20, 2022
@annedraya Solidarity! I was also working about 5 years ago and now I'm... very much not.
Show threadGeorge JulianNov 20, 2022
@annedraya that head wrap is 👌
Show threadwonky lines & squigglesNov 20, 2022
@annedraya I imagine it must feel surreal to remember how things used to be not that long ago. Is it ok if I say you look pretty? Dimples! 😍
Show threadandrea patriceNov 20, 2022
@wonkylines compliments gracefully accepted! Thank you ☺️
Show threadColleenSteckelNov 20, 2022

@annedraya Love the head wrap.

You aren't alone fighting gravity 😉

There is so much we knew by 2014 about #MyalgicEncephalomyelitis... but getting the word out has been (and continues to be) a challenge. I got sick in 89...

Advocating for better is my outlet for the frustration I feel about the lack of care available.