Living with Visual Snow Syndrome: A Personal Story
In February 2025, a woman in the UK began experiencing unusual visual disturbances, including flashing lights and an overwhelming sense of brightness, which she initially attributed to a migraine. Over time, however, the symptoms, which included visual static, after-images, and severe light sensitiv... [More info]
Last night I learned about the visual snow syndrome. I guess I've always had that? I thought people usually saw things as if through a kind of static.
Also,
✅ Seeing floaters
✅ Photophobia (bright light hurts)
✅ Seeing negative after images
I thought everyone had those and just learned to ignore them most of the time like I do?
Oh yeah, I also get migraines with auras sometimes, but luckily those are rare these days. The auras for me appear as absences of things in my visual field, so I know that's definitely not the same.
Anyway, I'm not a doctor... Maybe I'm just over self diagnosing or smh.
#VisualSnow #VisualSnowSyndrome #floaters #selfdiagnosing #TIL #migraines
@Dallin I honestly feel like #VisualSnow and #tinnitus are just two sides of the same coin, brain making shit up that isn't there, just in two different processing centers.
My #VisualSnow literally feels like looking through old black and white static from old televisions between channels, but clear.
At different times in my life I've also experienced phantom smells too. 
@Dallin All of my contacts in Neurology have confirmed that #tinnitus and #VisualSnow are definitely comorbid w/ #migraine. My daughter (9) has been developing #tinnitus and #VisualSnow as well, but hopefully her preventative will do more for her #migraines.
I was diagnosed w/ TMJ, and had a bite plane, had jaw surgery, the whole nine yards. Did nothing for my #migraines.
My SO was diagnosed w/ TMJ, and her bite plane has been incredibly helpful reducing her headaches.
Felt like my #tinnitus and #VisualSnow were extra loud and thick this morning, respectively, and then my head started to hurt, like a mild precursor to full #migraine. Electrolytes with breakfast didn't seem to stop it, so started the pre-abortive cocktail of benadryl, ginger extract, and Emeterm bracelet (all anti-nausea), with green LEDs on (don't actually help with migraine, but feels nice on the eyes).
Was hoping it wasn't going to be a #migraine day, but 🤷♂️.
First blog post in a while, this time a little bit of a personal one. It's about why, a few years ago, conferences suddenly became very difficult experiences for me, how I've learned to better cope since then, and what others can do to help.
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