Fighting for Answers: My Ongoing Battle with Suspected POTS, EDS, and Hypermobility (Part 1)

Ever wondered what happens when your advocacy efforts hit a wall? Discover the challenges and triumphs in my journey with suspected POTS, EDS, and hypermobility.

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Underdiagnosed and Undertreated, Young Black Males With ADHD Get Left Behind

A recent study found that young Black males are substantially more likely to be underdiagnosed and undertreated for the neurological condition than white peers.

Word In Black

`The average detection rates for mild cognitive impairment is 0.08 (interquartile range=0.00–0.02) for both clinicians and practices, suggesting that only about 8% of expected cases were diagnosed on average. Only 0.1% of clinicians and practices had #diagnosis rates within the expected range... Mild #cognitive impairment is vastly #underdiagnosed, pointing to an urgent need to improve early detection in primary care.`

https://link.springer.com/article/10.14283/jpad.2023.131

Detection Rates of Mild Cognitive Impairment in Primary Care for the United States Medicare Population - The Journal of Prevention of Alzheimer's Disease

Background Existing evidence points to substantial gaps in detecting mild cognitive impairment in primary care but is based on limited or self-reported data. The recent emergence of disease-modifying treatments for the Alzheimer’s disease, the most common etiology of mild cognitive impairment, calls for a systematic assessment of detection rates in primary care. Objectives The current study aims to examine detection rates for mild cognitive impairment among primary care clinicians and practices in the United States using Medicare claims and encounter data. Design Observational study. Setting Medicare administrative data. Participants The study sample includes a total of 226,756 primary care clinicians and 54,597 practices that had at least 25 patients aged 65 or older, who were enrolled in Medicare fee-for-service or a Medicare Advantage plan between 2017 and 2019. Measurements The detection rate for mild cognitive impairment is assessed as the ratio between the observed diagnosis rate of a clinician or practice as documented in the data, and the expected rate based on a predictive model. Results The average detection rates for mild cognitive impairment is 0.08 (interquartile range=0.00–0.02) for both clinicians and practices, suggesting that only about 8% of expected cases were diagnosed on average. Only 0.1% of clinicians and practices had diagnosis rates within the expected range. Conclusions Mild cognitive impairment is vastly underdiagnosed, pointing to an urgent need to improve early detection in primary care.

SpringerLink
Startling New Research: Sickle Cell Disease Is 11 Times More Deadly Than Previously Thought
A recent study indicates that the death toll attributed to sickle cell disease is likely 11 times higher than what mortality records alone suggest. Not only is the condition often underdiagnosed, but it also heightens the risk of various complications such as infections, strokes, cardiac issues, kidney dysfunction, and complications during pregnancy.
https://scitechdaily.com/startling-new-research-sickle-cell-disease-is-11-times-more-deadly-than-previously-thought/ #SickleCell #deadly #underdiagnosed #mortality
Startling New Research: Sickle Cell Disease Is 11 Times More Deadly Than Previously Thought

The hereditary illness affects 8 million individuals, disproportionately impacting young adults, adolescents, and children. A recent study indicates that the death toll attributed to sickle cell disease is likely 11 times higher than what mortality records alone suggest. Not only is the condition o

SciTechDaily