Dr Priya Sammani ( MBBS ,DFM )Imagine looking in the mirror one morning and something just... feels off. #autoimmuneeyecondition #diplopia #eyebulging #GravesEyeDisease #proptosis #thyroideyedisease #thyroidophthalmopathy
BexMy stylist was like “you still have 2-3 times what I have on a good day, but I get it. You’ve lost a lot” 😅 I had been putting off going once I started losing but she pointed out less length = less weight = less loss. So we chopped it short
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
Chopped my hair today. With the Graves’ disease I lost a lot of hair & then just as that stopped, I started the Tepezza which kicked the hair loss into overdrive. Luckily my hair started out as what I call a lion’s mane so I had a lot to start but it’s still been traumatic.
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
Crowdsourcing my medical advice bc the dr yesterday basically said if I was going to get better, I would have started getting better by now & my side effects are so bad I could just quit bc it's not worth it. But I asked Reddit & they're telling me they didn't notice improvement until treatments 3-4 & I'm only on treatment 2
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
At the eye specialist to see if my Tepezza treatments have made any sort of measurable difference yet. I’ve only had two treatments so far so I’m not optimistic that we’ll see any change but 🤷♀️
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
My hearing has stayed the same! 🎉🙌 I meet with the Oculoplastic Dr next week basically just to confirm everything is good and I get to keep going on the Tepezza
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
I have my first follow up hearing test today to see if the Tepezza has caused any more hearing loss than I already had to start with and I. Am. Anxiety.
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie
On the left one year ago this week getting steroid infusion treatments
On the right today getting Tepezza infusion treatments
Thanks. I hate it.
Tried to watch Immaculate tonight. The movie with Sydney Sweeney. But there is a lot of Italian in the beginning which requires subtitles & I can’t see them. Womp womp. Maybe I’ll wait & watch it on my iPad during treatment because the words will be closer to me on an iPad
Got the call yesterday that insurance approved the Tepezza treatments for my thyroid eye disease so I start next week. Today I got another welcome package from Tepezza. This time with a gel sleep mask and a workbook. I know they’re trying to be nice but this makes it all feel even more intense 😅
