My stylist was like “you still have 2-3 times what I have on a good day, but I get it. You’ve lost a lot” 😅 I had been putting off going once I started losing but she pointed out less length = less weight = less loss. So we chopped it short

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie

Chopped my hair today. With the Graves’ disease I lost a lot of hair & then just as that stopped, I started the Tepezza which kicked the hair loss into overdrive. Luckily my hair started out as what I call a lion’s mane so I had a lot to start but it’s still been traumatic.
#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie

Crowdsourcing my medical advice bc the dr yesterday basically said if I was going to get better, I would have started getting better by now & my side effects are so bad I could just quit bc it's not worth it. But I asked Reddit & they're telling me they didn't notice improvement until treatments 3-4 & I'm only on treatment 2

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie

At the eye specialist to see if my Tepezza treatments have made any sort of measurable difference yet. I’ve only had two treatments so far so I’m not optimistic that we’ll see any change but 🤷‍♀️

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie

My hearing has stayed the same! 🎉🙌 I meet with the Oculoplastic Dr next week basically just to confirm everything is good and I get to keep going on the Tepezza

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie

I have my first follow up hearing test today to see if the Tepezza has caused any more hearing loss than I already had to start with and I. Am. Anxiety.

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness #Spoonie

On the left one year ago this week getting steroid infusion treatments

On the right today getting Tepezza infusion treatments

Thanks. I hate it.

#GravesDisease #ThyroidEyeDisease #ChronicIllness #Tepezza

Got the call yesterday that insurance approved the Tepezza treatments for my thyroid eye disease so I start next week. Today I got another welcome package from Tepezza. This time with a gel sleep mask and a workbook. I know they’re trying to be nice but this makes it all feel even more intense 😅

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness

Tepezza sent me a whole ass welcome kit with a tote bag 😭 like I don’t want a tote bag and a bunch of motivational quotes! I want your drug to fix my eyes without making me lose my hearing. Can we do that? 😭😭

#GravesDisease #ThyroidEyeDisease #Tepezza #ChronicIllness

The patient advocate was like “we can have a home nurse come do it in your home!” And I was like “… mmmm I appreciate that but I feel like it’s going to be so awkward sitting with a random stranger in my living room watching tv while I get the infusion for an hour and a half” 😅😅😅
#ThyroidEyeDisease #GravesDisease #Tepezza