RANT: Started using the new ENFit feeding tube bags and accessories. ENFit was an industry-wide change to "fix" a problem that didn't exist. I put it off as long as I could. Feeding tubes have been around since the 1800s, pretty much unchanged. There wasn't a problem "mixing up" feeding tubes with intravenous IVs. They could have colored coded the existing setup.

I shouldn't have to have to use a wrench to use my feeding tube or its accessories, like medication syringes. I shouldn't have to use an ENfit cleaning kit because stomach contents (puke) now reside in the connections after using them because you can't flush the cavity. #Medical #MedMastodon #enshittification #Enteral #Nursing #FeedingTube

I shouldn't have to spend a hundred dollars to buy various adapters to use my stocked up medical supplies or spend thousands to buy new ENFit supplies. Of course, nothing is being produced "generically" now. It's all proprietary and shared by the few large mega-medical supply manufacturers through a trade organization they formed just for enteral (feeding tubes) care called the Global Engineered Device Supplier Association

After 14 years with my feeding tube, ENfit has now taken away my #accessibility to use my feeding tube and self-administer some of my medical care.

The ENFit transition is a global patient safety initiative to standardize enteral feeding tube connectors, replacing old "legacy" connectors with a new, twisting design to prevent misconnections with IV lines.

https://stayconnected.org/enfit/

Hey, hi, hello.

There are a million reasons someone may need a #FeedingTube.

There are different kinds of feeding tubes. They look different. They work differently.

Some people with feeding tubes cannot ingest anything by mouth. Some people absolutely can ingest things by mouth.

You can tell exactly nothing about someone's possible condition(s) by looking at their feeding tube.

No one owes you any kind of explanation regarding their feeding tube.

That is all. You may go.

I've now had my feeding tube for 13 years.

Many people knew me as #FeedingTubePaul due to my previous social media accounts on other web platforms due to my advocacy and how-to videos.

It's important to know your choices when filling out your living wills, esp younger people, like if you want artificial nutritional life support. COVID showed us that people of all ages should be aware of their options. I almost didn't get a feeding tube because I was unaware of what life with one would be like. I'm glad I did. It took watching videos of children born with digestive issues living their best lives, just eating differently, to change my mind.

Here is a +decade old short profile about the reasoning for my #FeedingTube from the makers of the Mic-Key feeding tube. #MedMastodon

It records the beginning journey for me. #Introduction

Edit: They changed their website after merging companies.so the link to Wayback Machine. https://web.archive.org/web/20200805134551/https://tubefed.com/tales/meet-paul-chambers/
#MedMastodon #Parkinsons #Health

I've been meaning to write this post for several months now to talk about our daughter's problem and, above all, about this center, https://www.notube.com, and the benefits it has brought us- well, rather, our daughter. Thank you NoTube!

https://jcletousey.dev/en/posts/2025/03/13/no-tube-with-notube/

#personal #family #healthcare #feedingTube #NoTube

Random #FeedingTube life coping hack from of 14-year feeding tuber:

I gargle with a half shot of Johnnie Walker Black Label scotch and my wife makes my lip care balm out of bacon grease so I can still enjoy the taste of bacon.

Out of the blue, wife brings me some homemade lip balm & it's made out of Slim Jims. She was like, figured you were tired of bacon flavored. Of course, never. It'll pair well with my Johnnie Walker Black Label mouth rinse

Find you a life partner who will blend up Slim Jims as lip balm &you'll have a lifelong life partner

Shoutout to my wife! I don't know which I like better... The homemade bacon flavor lip balm or the Slim Jim

Every little taste source helps after 12-years with a #FeedingTube

Anonymous commission

When the trucker outgrows all of his trucks, there's only one thing left for him to do: get even bigger!

#fat #fatfur #furry #furryart #belly #gut #blob #immobile #weightgain #trucker #slob #sweat #feedingtube #stretchmarks #belch