Jeg hører til sidste halvdel af Generation-X og har siden 1981 aldrig boet i et hjem uden computer. Det blev til en hobby, til en uddannelse og endelig til en karriere.
Jeg intereserer mig for politik og samfund, oftest med en IT-vinkel og ofte med en skeptisk vinkel.
Jeg er liberal, men foragter de neoliberale anarkokapitalister.
Jeg er blevet far i en sen alder og så er jeg udiagnosticere autist og afventer udredning for ADHD.
#dkmastadon #dkpol #ActuallyAustic #introduction #introduktion
En ce début de journée qui ressemble au printemps, voici un texte que j’ai écrit en avril dernier pour souligner le 40e mois de l’autisme. N’ayant plus les autres réseaux sociaux pour me voler de mon temps 😉, je vais recommencer à mettre mon blogue à jour. Bonne lecture!
https://www.rangeplieaime.com/2024/04/normal-pas-normal-juste-different.html?m=1
It's really difficult for me to admit that my neurodivergence is a disability. I'm still stuck in the "if I tried harder" mindset.
I've been trying hard and it's not enough.
I'm also transgender and there is so much I should do to insure my safety, but I can't. I have a passport and that was a herculean effort a couple of years ago.
I'm invisible, thankfully. I've worked from home for 15 years. Since the pandemic, we have everything delivered. The only people I see with any regularity are my doctor's and my wife's doctors.
My wife is physically disabled with chronic pain and a short list of other conditions that will only get worse with age. She's also highly ADHD and a tiny, tiny bit autistic. Her disabilities leave her exhausted most of the time.
My primary duty is to take care of her. My job supports this, not just through insurance, but through a boss who understands that self and family are more important that work. I have no trouble taking the time off I need to be there for my wife.
But that leaves little mental bandwidth left for other things. If we had kids, they would be taken away from us due to the state of our house. That's not an exaggeration.
I try so hard but it isn't enough. It will never be enough. I have no close family or nearby friends. I'm embarrassed for anyone to see how bad things have gotten.
My mom and step-dad are coming up for my wife's neurosurgery in two weeks. They aren't staying here but the will see the house. I have no idea if they will react with compassion, disappointment, shock, or something else entirely.
I don't even know where to start.
Right now, I'm just crying a lot and I don't know what else to do.
I feel helpless and a bit worthless.
I want to do the things that need to be done.
I want to and I try, but it doesn't happen.
@luckytran this kind of thing has been precisely why I feared RFK even when he decided to run in the first place, because I'm #ActuallyAustic.
He is way beyond unqualified for being involved with healthcare. This stance of his is 100% ablest
@VulcanTourist @farah also consider that in addition to not being able to take any significant amount of repetition, I am also challenged at following routines and procedures without deviation. This was exemplified when I took bass guitar lessons. I needed to deviate from the rhythm that was written down.
For me, improvisation and spontaneity are the mental equivalent of adrenaline for regular thrill seekers.
@ashleyspencer @actuallyautistic
In what appears to be an atypical situation, I am not usually sensitive to fluorescent lights. On the other hand, the sun is way too bright - so much so that it can trigger a sneeze reaction. Incandescent lighting is too dim for me as well…
@roknrol I totally relate to that experience. I find it extremely difficult to navigate. Are you looking for advice or just musing out loud?
@joshsusser thank you for posting this! I too enjoyed the tv adaptation but haven’t read the books. I will add them to my list now!
Review of "Unmasking Autism" (5 stars): A book I wish it would be translated into > 50 languages