Dr. Anna LatourJust dropping this here for no particular reason.
https://youtube.com/shorts/qR4GThCcl2Y
#Autism #RFK #Spectrum10k #WeAreAgainstEugenics #Comedy #JoeWells
⁂ Panda | 서판다Good news: the Spectrum 10K project is closed:
https://www.autismresearchcentre.com/projects/spectrum-10k
The Spectrum 10K project grant I obtained under freedom of information is at
https://gizmonaut.net/autism-documents/
#Spectrum10K #S10K #actuallyAutistic #Neurodivergent #SBC #autism
@actuallyautistic
Spectrum 10K - Autism Research Centre
Statement from the Spectrum 10K research team, 30th January 2025 Today we are publishing the Spectrum 10K consultation report and announcing the next steps for the project. We know this announcement has been highly anticipated by many autistic people, and their families and carers, including those who took part in the consultation. We would like […]
Fergus Murray..and here's what I wrote about the outstanding concerns around #Spectrum10k back in 2021.
#AutRes #ActuallyAutistic
oolong.medium.com/outstanding-...
Outstanding Concerns about Spe...
Outstanding Concerns about Spe...
Anna Nicholson@NightlyBye @actuallyautistic Absolutely – disappointment shared by many of us, I think
And it’s not just Chris Packham!
I noticed that Jools Holland (?!) is an ‘ambassador’ for the Autism Centre of Excellence 🙄
They do love that word, don’t they! I’d have expected them to steer clear after the embarrassment caused by Spectrum10K’s ambassadors – especially the one who went around abusing people on social media 😞
#ActuallyAutistic #AutismCentreOfExcellence #ChrisPackham #JoolsHolland #SimonBaronCohen #Spectrum10K
Was just on YouTube watching a nice video by an Autistic YouTuber 😊
Concerned to see it being followed by an ad featuring Chris Packham plugging the suicide prevention work of the Autism Centre of Excellence in Cambridge, and asking Autistic people and their families to complete a survey
ACE is a charitable offshoot of Simon Baron Cohen’s Autism Research Centre, with which Chris Packham has had a controversial relationship 😔
It all sounds very worthwhile superficially, but I’m very wary of taking part in such a survey – am I too cynical?
Transcript:
‘Hello. I’m Chris Packham. I’m a keen supporter of the Autism Centre of Excellence in Cambridge. And today I’d like to ask you to take part in a vital survey.
‘Many autistic people are not getting the support that they need, and this can lead to the real danger of suicide. We believe that this can and must change.
‘Our survey is designed so that we can better understand what support could reduce the number of autistic people dying by suicide.
‘So if you are an autistic person and you’ve struggled with suicidal thoughts, or if you’re a parent or a carer, or someone close to autistic people who has first hand experience of these issues, please take part in our survey. It takes just 15 minutes, and the information that we gather could help provide proper support for autistic people when they need it most. Thank you.’
@actuallyautistic
#SimonBaronCohen #ChrisPackham #AutismResearchCentre #AutismCentreOfExcellence #Spectrum10K #suicide #suicidality #ActuallyAutistic
Ann 🧡 (she/her)First update on the infamous #Spectrum10K project that I've seen in a while. Article notes that the project website is down.
> The organizers of Spectrum 10K, a large-scale autism genetics study, have delayed publishing the results of a consultation that launched more than a year ago.
https://www.thetransmitter.org/spectrum/spectrum-10k-consultation-report-delayed/
Transcripts of the #Spectrum10K webinars held in May have been published. Not that you would know by looking at the HVM or spectrum10k websites. Thankfully Liam O'Dell is keeping a (sharper than mine) eye on this.
The transcripts are at http://www.hopkinsvanmil.co.uk/spectrum-10k-the-consultation
Liam O'Dell's analysis is at https://liamodell.com/2023/09/28/spectrum-10k-consultation-autism-research-dna-hopkins-van-mil-transcripts-webinar-university-of-cambridge-simon-baron-cohen/
The S10K grant agreement is only on my website: https://gizmonaut.net/autism-documents/
#S10K #Neurodivergent @actuallyautistic @autisticadvocacy
1/n
@actuallyautistic In its consultation document, the #Spectrum10K team had written ‘We incorporated the feedback of our Advisory Panel into the creation of the Spectrum 10K study protocol, which is the manual that the research team will follow as they carry out the study.’
Of course they hadn’t published this protocol, so I obtained it under #FoI and just added a link to it at https://gizmonaut.net/autism-documents/
@actuallyautistic @autisticadvocacy #ActuallyAutistic #SBC #S10K
#Spectrum10K is organising a series of webinars and drop-in sessions this month. Details at https://www.hopkinsvanmil.co.uk/spectrum-10k-the-consultation
That document also links to Spectrum 10K Themes and Responses to Questions (https://www.hopkinsvanmil.co.uk/s/Formatted-full-QA-document-HVM-FINAL-sx2j.pdf) which prompted me to send another #FoI request (https://www.whatdotheyknow.com/request/spectrum_10k_changes_to_grant_ap) asking about changes to the grant application and the study protocol.
(S10K grant application is at https://gizmonaut.net/autism-documents/)
In case it's helpful to some I've consolidated on one page the grant agreements of #Spectrum10K and #AIMS-2-Trials I obtained some time ago using Freedom of Information laws.
See https://gizmonaut.net/autism-documents/
@actuallyautistic @autisticadvocacy #ActuallyAutistic #S10K #FoI