Good news: the Spectrum 10K project is closed:
https://www.autismresearchcentre.com/projects/spectrum-10k

The Spectrum 10K project grant I obtained under freedom of information is at
https://gizmonaut.net/autism-documents/

#Spectrum10K #S10K #actuallyAutistic #Neurodivergent #SBC #autism
@actuallyautistic

Spectrum 10K - Autism Research Centre

Statement from the Spectrum 10K research team, 30th January 2025 Today we are publishing the Spectrum 10K consultation report and announcing the next steps for the project. We know this announcement has been highly anticipated by many autistic people, and their families and carers, including those who took part in the consultation. We would like […]

Autism Research Centre

Transcripts of the #Spectrum10K webinars held in May have been published. Not that you would know by looking at the HVM or spectrum10k websites. Thankfully Liam O'Dell is keeping a (sharper than mine) eye on this.

The transcripts are at http://www.hopkinsvanmil.co.uk/spectrum-10k-the-consultation

Liam O'Dell's analysis is at https://liamodell.com/2023/09/28/spectrum-10k-consultation-autism-research-dna-hopkins-van-mil-transcripts-webinar-university-of-cambridge-simon-baron-cohen/

The S10K grant agreement is only on my website: https://gizmonaut.net/autism-documents/

#S10K #Neurodivergent @actuallyautistic @autisticadvocacy

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Hopkins Van Mil - Spectrum 10K consultation

Information on the Spectrum 10K consultation. Links to the consultation survey. Details of responses to comments and questions received about the study.

Hopkins Van Mil

@actuallyautistic In its consultation document, the #Spectrum10K team had written ‘We incorporated the feedback of our Advisory Panel into the creation of the Spectrum 10K study protocol, which is the manual that the research team will follow as they carry out the study.’

Of course they hadn’t published this protocol, so I obtained it under #FoI and just added a link to it at https://gizmonaut.net/autism-documents/

@actuallyautistic @autisticadvocacy #ActuallyAutistic #SBC #S10K

Grant agreements

#Spectrum10K is organising a series of webinars and drop-in sessions this month. Details at https://www.hopkinsvanmil.co.uk/spectrum-10k-the-consultation

That document also links to Spectrum 10K Themes and Responses to Questions (https://www.hopkinsvanmil.co.uk/s/Formatted-full-QA-document-HVM-FINAL-sx2j.pdf) which prompted me to send another #FoI request (https://www.whatdotheyknow.com/request/spectrum_10k_changes_to_grant_ap) asking about changes to the grant application and the study protocol.

(S10K grant application is at https://gizmonaut.net/autism-documents/)

@actuallyautistic @autisticadvocacy #S10K

Hopkins Van Mil - Spectrum 10K consultation

Information on the Spectrum 10K consultation. Links to the consultation survey. Details of responses to comments and questions received about the study.

Hopkins Van Mil

In case it's helpful to some I've consolidated on one page the grant agreements of #Spectrum10K and #AIMS-2-Trials I obtained some time ago using Freedom of Information laws.

See https://gizmonaut.net/autism-documents/

@actuallyautistic @autisticadvocacy #ActuallyAutistic #S10K #FoI

Grant agreements

The #Spectrum10K consultation has been launched.

It mentions: 'There are limitations to what can be changed about the study because of the agreement with the funders.'

It then pretends that 'You can find out more about this agreement here.' but that linked doc does not provide a link to that grant agreement. #SBC must still be trying to hide it.

To find out what #S10K is really about I've published its grant agreement at https://gizmonaut.net/blog/autism/2022/11/spectrum10k-grant-application.html

@autisticadvocacy @actuallyautistic #FoI

Calm, almost too calm

If the #ARC had published the full grant agreement for #Spectrum10K in the first place... or had done so after I emailed Simon Baron-Cohen (#SBC) asking about it... or had not tried to avoid complying with the FoI Act... then I wouldn’t have had to send ‘numerous #FoI requests’.

To this date the full #S10K grant agreement is only published on my website. See https://gizmonaut.net/blog/autism/2022/11/spectrum10k-grant-application.html and https://gizmonaut.net/blog/autism/2022/10/spectrum-10k-decision-notice.html

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Calm, almost too calm

In that recent Spectrum article: ‘Because the Autism Research Center is part of the University of Cambridge, which is publicly funded, the team and their collaborating National Health Service sites received numerous Freedom of Information Act requests for details of the study, the team’s email exchanges and internal communications.’

Doh!

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@actuallyautistic @autisticadvocacy #FoI #Spectrum10K #S10K #ARC #SBC

Spectrum 10k will never be acceptable: Here is why

Emergent Divergence
A brief history of Spectrum 10k

Emergent Divergence