btw, the fun thing about the procedure is that it temporarily shuts down (force-relaxes) the muscle in your throat that people with R-CPD can't relax, by putting some botox in it,

BUT even after the botox has "worn out", a majority of people (~80%) retain the ability to burp!

so that gives rise to the idea that there's some muscle memory thing going on; that your brain then understands how to relax that muscle from then on.

so THAT gives rise to the (well, my) idea that you should be able to somehow do this manually, learn to control this muscle, without having the procedure at all.

now I'm not super sure if that's true but I've already been trying loads of stuff, like massaging the throat a little, moving my head in weird angles, trying swallowing in weird ways etc. - no luck so far

but now I did find this topic on reddit https://www.reddit.com/r/noburp/comments/hgrk0e/my_journey_on_how_i_solved_rcpd_without_the_botox/

and behold, if I put my fingers in my throat in this specific way, some sound comes out that sounds a lot like a burp! (can't be sure since I don't know how it sounds "from the outside" lol) *MUCH EXCITE!!*

(I don't have much of a gag reflex, which I guess may be related to the whole R-CPD thing)

I'm gonna practice this a lot and see if it works! would be cool if I can make this work and not need the procedure at all :) and even if I end up not being able to learn this, it's great to have this manual method of "air vomiting"; maybe if I do this regularly after eating/drinking, I get less bloated to start with  

I hope people with #RCPD find this or that thread and that it may help them! 🙏

woohoo, I'm gonna have another GP appointment about my R-CPD ('non-burp syndrome') next monday, AND it's gonna be another temporary GP, so not the stupid previous one who didn't seem to believe R-CPD was a thing  

I hope this one will refer me for the procedure that fixes the issue!

#RCPD

So, I have R-CPD. Colloquially, "no-burp syndrome". I can't burp. Never could.

I never thought much of it, I thought it was kinda funny and odd, but alas, who cares?

Only recently, it was brought to my attention that this was an actual medical thing that can cause all kinds of issues - most of which I have! (abdominal bloating, constipation, heartburn, not being able to "fully breathe in", painful hiccups..)

I've always ascribed these issues to my IBS/SIBO, but I'm starting to understand that it might very well be the other way around!

Not being able to burp => means pumping massive amounts of oxygen through my GI tract => means IBS!

It's caused by some muscle in your throat not having a "relaxation" setting, and good news; there's a relatively simple procedure to fix this!

All this, both the medical recognition of the issue, and the fix, are pretty novel; like only some years old. So many people may have this, but not know about this thing at all. That's why I wanted to share! Cheers!

https://www.youtube.com/watch?v=O4e3YeE8z_k

#IBS #RCPD #SIBO

What is the Relationship between R-CPD (no-burp) and GERD? SIBO? IBS?

YouTube

Retrograde cricopharyngeus dysfunction prevents upper‑esophageal gas release, producing significant aerodigestive symptoms. Emerging evidence shows targeted Botox injection can restore burping via neuromuscular retraining. #RCPD #Dysphagia #Otolaryngology #SciComm #ScienceQuickly

https://www.scientificamerican.com/podcast/episode/daily-misery-why-some-people-cant-burp-and-how-botox-comes-to-the-rescue/

‘Daily misery’—why some people can’t burp, and how Botox comes to the rescue

For those with retrograde cricopharyngeus dysfunction, daily life can be miserable, with symptoms such as bloating and chest pain. But a simple Botox injection can help

Scientific American

Na 12 jaar pijn kan Vigo eindelijk boeren dankzij injectie #OmroepWest #AlphenAanDenRijn #R-cpd #Rcpd #Boeren #Botox

https://owst.nl/5021719/M

Na 12 jaar pijn kan Vigo eindelijk boeren dankzij injectie

Na een trektocht van meer dan twaalf jaar langs allerlei artsen en specialisten kan Vigo Hooijer uit Alphen aan den Rijn eindelijk gewoon een boer laten. Dat kon hij niet en daardoor had hij iedere dag pijn. Een filmpje op TikTok bracht hem op het spoor naar een kliniek in Amsterdam. Een spuit botox bleek de oplossing.

Omroep West
Coffee and Code 2020-08-27

PeerTube
Coffee and Code 2020-03-29

PeerTube