poconnorYour Story Matters!
For Rare disease day, people with PKU are sharing their story.
👧 Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.
🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.
📦️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.
