8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”
#neisvoid #longtermdisease #longtermillness
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
28/
“Use Others to Support You as a #Caregiver (continued)
If you are feeling stressed or overwhelmed and need to “dump” or share your emotional experience, do so with people further away from the inner circle than you are. Don’t be afraid to find your own therapist or friend that you can “dump” to when you are feeling overwhelmed-we all need a place like this.”
27/
“Use Others to Support You as a #Caregiver (continued)
This means that if you are addressing someone closer to the inner circle than you, the communication should involve listening, comforting and validating.”
3/
“If you’re one of the many people with chronic health problems who don’t look sick, the burden is on you to make your condition “visible.” If you don’t take this pre-emptive action, people’s expectations of you may be way out of line with what you can handle”
Tom Kindlon