4/

“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”

#longtermillness #caring #mecfs #cfs #pwme
@mecfs

8/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”

#neisvoid #longtermdisease #longtermillness

@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies

6/

“Preparing Information for your Doctor Appointment - Template”

https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf

#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness

10/
“The problematic conversations that transpire between clinicians and patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”

#LongTermIllness #chronicallyill
@mecfs @longcovid @chronicillness #mecfs #longcovid

2/

2. When You Need to Cancel or Change Plans

3. When You’re Unable to Keep Up With Your Kids

4. When You Depend on Others and Feel Like a ‘Burden’

5. When You’re Unable to Work and Contribute Financially to Your Family

#spoonie #longtermillness #chronicdiseases
@mecfs @longcovid @chronicillness @spoonies @disability @fibromyalgia @pots

5/

“Focus on what is within your control

Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”

#chronicallyill #longtermillness #chronicillness #chroniclife @mecfs
#MEcfs #CFS #PwME #LongCovid @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FM #POTS