A reminder of why we need informed consent and ethics approval for human participant research.
"In 1964, the medical researcher Paul Beeson, who had been a professor of medicine at both Yale and Oxford, wrote that the Nuremberg Code was “a wonderful document to say why the war crimes were atrocities, but it’s not a very good guide to clinical investigation which is done with high motives”."
https://www.theguardian.com/news/2025/feb/11/the-coventry-experiment-why-were-indian-women-in-britain-given-radioactive-food-without-consent
#ResearchEthics #MedicalEthics #InformedConsent #HumanResearch #HistoryOfScience
The Coventry experiment: why were Indian women in Britain given radioactive food without their consent?
When details about a scientific study in the 1960s became public, there was shock, outrage and anxiety. But exactly what happened?
With the current situation in the #US, several of my former colleagues there are looking for a #PostDocJob in #Europe, to do #BehaviouralNeuroscience or #ComputationalNeuroscience in #SpatialCognition (or adjacent).
Lots of hashtags I know..
Do you know a #EU or #UK #Neuroscience lab looking to hire a postdoc in these fields? Let me know and I'll pass it on to them!
Edit: adding #RodentResearch and #humanresearch for the species concerned (in this case)
Can AI Replace Human Research Participants? These Scientists See Risks
Several recent proposals for using AI to generate research data could save time and effort but at a cost
Was ich gerne in der ISS machen würde:
Einen derben Furz anzünden und gucken, ob er mich durch die Station katapultiert.
#Hurz #ISS #HumanResearch
Cambridge Launches AI Research Ethics Policy
Cambridge launches ChatGPT ethics policy
Paper explores how researchers have responsibility for the stories they request and retell
Anette Bringedal Houge uses experiences from her own research projects to discuss ethical dilemmas researchers face when working on sensitive topics.
Systematic review of community engagement approach in research: describing partnership approaches, challenges and benefits
#CommunityEngagement #HumanResearch
https://link.springer.com/article/10.1007/s10389-022-01799-9
Systematic review of community engagement approach in research: describing partnership approaches, challenges and benefits - Journal of Public Health
Background Community engagement in research has gained momentum as people have realised the importance and value it brings to research. However, a lack of standardization in the engagement approach has been reported in the literature. This systematic review aims to identify and synthesize the different engagement approaches to contextualize future implementation efforts. Methods The databases Patient Centred Outcomes Research Institute (PCORI), PubMed and Google Scholar were searched for English language studies published between 2008 and 2021 that focused on stakeholder involvement and phases of research engagement. Independent reviewers conducted literature search, screening, quality assessment, data extraction and analysis following previous study formats. Results Of the 2227 original articles retrieved, 125 were reviewed fully, of which 48 studies were included in this review. Of these 48 studies, 34 (70.8%) were health studies involving any form of engagement, while 14 (29.2%) were non-health. Most studies originated from high income countries, mainly the USA and engaged ethnic minorities, patients, disadvantaged groups and war veterans. All studies reported engagement at various levels. However, there was no standard criteria to select the type of engagement. Engagement with communities was used to develop research tools, identify research questions and harness local experiences. There were different terminologies and engagement approaches, which makes it difficult to synthesise and conceptualize the evidence. Conclusions Harnessing local experiences and perspectives by involving stakeholders at the earliest stage is beneficial in terms of clarifying approaches which best fits the local context. It is important to delineate between the traditional and community engagement approach.
Matt Hodgkinson
El Duvelle Neuro
Bc Clarity Carlton-Martin
Philipp Johannes Weber
Alex 🍁 🇨🇭