Mastodawn

URGENT: MEDICAL EMERGENCY 🚨
My nebulizer just broke, and as someone living with Cystic Fibrosis, I cannot breathe properly without it. This machine is my lifeline for daily treatments.
A replacement costs $300, which I urgently need to raise to get back on my treatment plan. Every hour without it is a risk to my lung health.
If you can donate even a small amount or share this post, it would mean the world to me.
Please help https://chuffed.org/project/149562-urgent-assistance-for-monas-son
#CysticFibrosis #CFWarrior #MedicalHelp #gaze

Urgent Assistance for Mona's Son

Hello, I am Amir Hartt, and I am using my mother's Chuffed account to raise funds for my friend Mona Al-Ashqar from the Gaza Strip. Funds will be transfered via SWIFT to Mona's IBAN address with Bank of Palestine.

Chuffed

JAK & Willi Feb 24

Ich sollte Lotto spielen …
Im 💩 Lotto bin ich ganz weit vorn. Frag mich heute schon den ganzen Tag wieso ich so gereizt bin.

„Kaftrio (Elexacaftor/Tezacaftor/Ivacaftor) kann bei manchen Patienten mit Mukoviszidose neuropsychiatrische Nebenwirkungen wie Reizbarkeit, Stimmungsschwankungen oder Angstzustände verursachen, insbesondere zu Therapiebeginn.“

#spoonie #chronicillness #cysticfibrosis #mukoviszidose

NewsletterTF Feb 24

Children with Cystic Fibrosis Experience Ongoing Gut Inflammation

Learn why children with cystic fibrosis have gut inflammation. It's due to a faulty gene affecting digestion and causing health problems. Find out what happens next.

#CysticFibrosis #GutHealth #ChildHealth #DigestiveIssues #CFResearch

https://newsletter.tf/why-children-with-cystic-fibrosis-have-gut-inflammation/

NewsletterTF Feb 24

Children with cystic fibrosis often have gut inflammation. This is because a faulty gene stops their body from digesting food well, leading to more health issues.

#CysticFibrosis #GutHealth #ChildHealth #DigestiveIssues #CFResearch

https://newsletter.tf/why-children-with-cystic-fibrosis-have-gut-inflammation/

Children with Cystic Fibrosis Face Ongoing Gut Inflammation Due to Faulty Gene

Learn why children with cystic fibrosis have gut inflammation. It's due to a faulty gene affecting digestion and causing health problems. Find out what happens next.

Follow GOLF Feb 15

https://www.fogolf.com/1166911/david-howard-looking-to-inspire-in-cystic-fibrosis-fundraiser/ David Howard looking to inspire in Cystic Fibrosis fundraiser #65kmFor65Roses #CysticFibrosis #DavidHoward #FotaIsland #GolfCourses

daszaschelei Feb 12

Ich habe morgens immer das Gefühl das #Finale von #thetaste gewinnen zu müssen, wenn ich meiner Tochter morgens einen Löffel mit Porridge, #Kreon, Vitaminen und derzeit auch noch #Antibiotikum gebe...

#Muko #Mukoviszidose #cf #cysticfibrosis

Science | The Guardian Jan 7

‘We were sitting with our calculator saying “we can afford that!”’ Joy for families as cystic fibrosis drug prices fall within reach https://www.theguardian.com/society/2026/jan/07/families-cystic-fibrosis-drug-prices-affordable-generic-triko-vertex-pharmaceuticals-beximco-trikafta-kaftrio #CysticFibrosis #GlobalHealth #GlobalDevelopment #Health #PharmaceuticalsIndustry #MedicalResearch #Business #Society #Bangladesh

‘We were sitting with our calculator saying “we can afford that!”’ Joy for families as cystic fibrosis drug prices fall within reach

The cost of medication was too high for thousands of CF sufferers around the world. Now a Bangladeshi company is making a generic version that will change lives

The Guardian

magneton0723 at KillBait Sep 23, 2025

Ed Sheeran Surprises Teen Recognized for Supporting Brother with Health Conditions

Michal Wojcik, a 15-year-old from Northampton, received a surprise visit from Ed Sheeran after being honored with a BBC Make a Difference Young Hero Award. The award recognized Michal’s dedication to caring for his 13-year-old brother, Jakob, who has cystic fibrosis and type 1 diabetes. During an em... [More info]

When I was a child around 1980, my mother was camp nurse at an Easter Seals camp for ‘disabled children’, so I attended a cystic fibrosis camp despite not having the disease.

At the time, life expectancy with CF was under 20, and for two weeks the regimen that allowed even that was part of my day. As I moved through high school and into young adulthood it was a sadness to think that those kids had probably all died.

But then I got caught up on the effectiveness of treatments being pioneered and realized that thanks to research supported by the Cystic Fibrosis Foundation life expectancy had been slowly extended to the point that most of my cabin-mates are probably still alive today.

I encourage everyone to support the organization as you are able, and stop helping to elect awful ignorant numpties who value their ideologies ahead of the lives of sick children.

#CysticFibrosis #mRNA

Lifestyle | The Guardian US Jul 30, 2025

I spent my childhood in and out of hospital. At 19, I finally realised I had a terminal disease https://www.theguardian.com/lifeandstyle/2025/jul/30/i-spent-childhood-in-out-hospital-at-19-finally-realised-had-terminal-disease #Health&wellbeing #Cysticfibrosis #Lifeandstyle #Society #Health

I spent my childhood in and out of hospital. At 19, I finally realised I had a terminal disease

Born with cystic fibrosis, Yvonne Hughes was lucky to survive her teens. She definitely didn’t expect to make it into her 50s. The comedian talks about the years she spent struggling to breathe – and the ‘miracle’ drug that turned her life around

The Guardian