Artsea#Today my friend is driving me to the doctor. I am so grateful. Because of her, my hubby can save a family leave day.
Having a #ChronicIllnessDisability is hard on care takers, too.
Having a #ChronicIllnessDisability is hard on care takers, too.
Suswati Basu (巴苏) 
I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.
It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!
#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate