swissletUp for #parkrun this morning. Running is something of a struggle now, but I dragged my way round and then sat with a flask of coffee waiting for the last finisher. I’m run director on Saturday, so picked up the kit and then headed home for a shower, then lit a fire and had a nap. A good 2026 so far!
DanStafford
Good news, I suppose. This has the potential to help lots of people through diagnosis and beyond, perhaps to more effective treatment. For me, 20 years in with secondary-progressive MS and no treatment options…. Somewhat less so.
Science | The GuardianTwo new subtypes of MS found in ‘exciting’ breakthrough https://www.theguardian.com/society/2025/dec/30/two-new-subtypes-of-ms-found-in-exciting-breakthrough #MultipleSclerosis #Science #Health #UclUniversityCollegeLondon
I took my Nordic poles when we went for a walk earlier. It was only a couple of km, but the poles really help me walk in a straight line and not to favour my strong side over my weaker. I was also rewarded by a lovely beam of a smile from a lady walking with a single pole. Game recognising game, I think.
After all this time, I still don’t understand #MultipleSclerosis. A couple of days of much lighter exercise and my leg spasms and spasticity are worse. Fuck it, back to the rowing gym tomorrow (and, hopefully a water session too). That’ll show the fuckers.
Rural Witch & Quill 🧶🐓🔮My darling husband is trying his best to help me. I needed him to cook lunch and dinner. Lunch is open face sammiches and dinner is turkey breast in the crock pot. I can stand and I wobble when I walk, and if I move slowly I'm mostly okay but I didn't trust myself carrying anything heavy or using a knife. I swear he has ADD. I have to tell him step by step how to do things, and he gets distracted easily.
#ms #multiplesclerosis #vertigo #marriage
#ms #multiplesclerosis #vertigo #marriage
It's been 7 hours. The symptoms are lesser, but when I sit up or move my head too fast or walk I feel off balance.
#ms #multiplesclerosis
#ms #multiplesclerosis
Didn't drink alcohol last night, woke up at 5:30 AM feeling drunk. Room was spinning, couldn't focus, couldn't walk straight. Went back to bed, 7:30 AM, symptoms have lessened but I'm still light headed and have an upset stomach. Still having trouble with dizziness and upset stomach.
#ms #multiplesclerosis
#ms #multiplesclerosis
Jon Hancock“Dr. Phillips’ grant aims to optimize Music-4-MS, a novel, ukulele-based cognitive rehabilitation intervention”
https://www.kxan.com/news/local/austin/ut-austin-professor-creates-new-ukulele-therapy/
#MultipleSclerosis #Health #Ukulele
(via ukulelia.com)