Jax UKJan 28

Finally got my surgery on Monday for a #hysterectomy

In true Jax fashion, I have spent every spare moment over the last 3 months reading and researching everything about the surgery and risk factors.

The surgery is due to a 12cm #ovariancyst and #adenomyosis thankfully both ovaries and uterus tested clear for cancer.

Scheduled surgery is for a total laparoscopic hysterectomy, but after careful consideration I want them to keep my cervix intact, as I am high risk for future prolapse but low risk for cervical cancer ( I don't have sex with men for a start!).

I've tried to get a telephone conversation with surgeon 5 times over the last 2 weeks and still not had a call back.

After 5 years of medical gaslighting I am not confident or strong enough for a battle to keep my cervix on the day of admission. I'm already not sleeping and seriously stressed about this!

Last attempt to get a callback tomorrow and I will be letting them know that if I don't get a conversation with surgeon by end of day Friday, I won't be admitting myself for surgery on Monday.

It shouldn't be this hard 😭

Carrie HyndsDec 10
Anyone on here stuggling with #endometriosis or #adenomyosis? I feel so frustrated with how long and mindwrecking the road to treatment is and even with the support of my partner and friends I'm sometimes in a very dark place with it.
dewgong3602 at KillBaitSep 27, 2025

Woman Discovers the Cause of Her Prolonged Labour After Adenomyosis Diagnosis

Lana Boocock, a mother of two, experienced an agonizing 85-hour labour during the birth of her first child. Later diagnosed with adenomyosis, she realized that this condition, which affects over 10% of women, may have contributed to her difficult childbirth. Adenomyosis causes the lining of the womb... [More info]

Johanna P MuellerJun 20, 2025

🎯 Submit to #MICCAI Workshop CAPI!

📝 Full papers (LNCS) & abstracts
🕵🏻‍♀️ Double-blind review
📬 Deadline: 25 June
capi-workshop.org
@FAU @ChariteBerlin

#miccai2025
#ReproductiveHealth #WomensHealth #PelvicHealth #Endometriosis #Adenomyosis #PCOS #Fibroids #CervicalCancer
#MinimallyInvasiveSurgery #PelvicImaging #AIforHealth #AIforHealthcare #fairnessinai

APLMar 10, 2025

Women with endometriosis or adenomyosis are at higher risk of long-COVID symptoms than unaffected women, likely due to immune dysregulation and chronic inflammation. Recognizing this vulnerability underscores the need for tailored therapies or preventive measures to mitigate lasting effects.

https://www.mdpi.com/3216544

#endometriosis; #adenomyosis; #long-COVID; #Immunedysregulation; #chronicinflammation.

Evaluation of Long-COVID Syndrome in a Cohort of Patients with Endometriosis or Adenomyosis

Background: Long-COVID is characterized by the persistency of COVID-19 symptoms beyond 12 weeks, and it is probably consequent to immune dysregulation induced by SARS-CoV-2 infection. Immune dysregulation is associated with and probably involved in the pathogenesis of chronic gynecological conditions like endometriosis and adenomyosis. This study evaluated whether the presence of endometriosis or adenomyosis increases the risk of long-COVID, i.e., the persistence of COVID-19 symptoms beyond 12 weeks since infection. Methods: This retrospective observational study was performed at the outpatient service for endometriosis and chronic pelvic pain, at a university hospital. The diagnosis of endometriosis/adenomyosis was primarily based on clinical symptoms and ultrasonography assessment. Data regarding infection, vaccination, symptoms associated with SARS-CoV-2 infection, and their persistence for a minimum of 12 weeks were collected. Results: This study included 247 women, 149 controls without and 98 cases with endometriosis/adenomyosis. Among these, 194 (116 controls and 78 cases) had suffered from SARS-CoV-2 infection. Rates of infection and vaccination were similar in the two groups. The distribution of the SARS-CoV-2 vaccine was uniform across the two cohorts. COVID-19 patients with endometriosis or adenomyosis exhibited a higher prevalence (p < 0.001) of dyspnea and chest pain. The prevalence of long-COVID beyond 12 weeks was higher in cases than controls (42% vs. 12%; p < 0.001) with chest pain (p < 0.001) and ageusia (p < 0.05), forming the most representative symptoms. Conclusions: Symptoms of long-COVID are more frequent in women with than without endometriosis/adenomyosis.

MDPI
Show threadTiggyFeb 8, 2025

@Kimberley

It was
interesting.
Glad to finally get it all over.

#Endometriosis #Adenomyosis

Freya V. LockeDec 9, 2024
Painful, Horrendous Adenomyosis. What Every Woman Needs To Know. https://medium.com/p/01832f5f2396
#adenomyosis
Painful, Horrendous Adenomyosis. What Every Woman Needs To Know.

For as long as I can remember, I have had issues “down there.” From irregular heavy bleeding and clots to backache, to casual mentions about how high my cervix is during smear tests (and the midwife…

Medium
Martin GötteOct 26, 2024
New cooperation paper of my Group at Münster University & @ChariteBerlin
: Characterisation of Pale Cells in #adenomyosis. #stemcells #endometriosis.https://doi.org/10.3390/biom14111355
Characterization of E-Cadherin, SSEA-1, MSI-1, and SOX-2 Expression and Their Association with Pale Cells in Adenomyosis

Adenomyosis (AM) is a gynecological disease characterized by the invasion of endometrial glands and stroma within the myometrium. The etiology and pathogenesis of AM remain inadequately understood. Pale cells were identified as a novel cell type characterized by the absence of desmosomal contacts and light-colored cytoplasm. These cells were observed to migrate individually through ultra-micro ruptures in the basal membrane of the endometrial glands, translocating into the stroma and then further into the myometrium. Our study aimed to explore the possible stem cell properties of these pale cells. Forty hysterectomy specimens were analyzed using immunohistochemistry and immunofluorescence to assess negative E-cadherin expression and the positive expression of stem cell markers SSEA-1, MSI-1, and SOX-2. Immunohistochemical analysis revealed the presence of pale cells and occasionally rounded, enlarged E-cadherin-negative cells predominantly in the basal endometrial epithelium. The stem cell marker SSEA-1 was significantly elevated in the basalis epithelium, as well as in the ectopic epithelium. SSEA-1 positive cells were also identified in the stroma and myometrium. Sporadic colocalization of SSEA-1+/E-cadherin– cells was confirmed through immunofluorescence. The positive staining of pale cells for SSEA-1 and MSI-1 was also confirmed at the ultrastructural level by immunoelectron microscopy. These findings indicate that pale cells may possess stem cell characteristics, particularly a positive SSEA-1 profile, warranting further in vitro investigation into their role in the pathogenesis of adenomyosis.

MDPI
healthfitwellhubApr 3, 2024
What is Adenomyosis of the uterus?🔥🔥🔥#Adenomyosis #uterus
Endometriosis InformationFeb 10, 2024

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#deargpodcast #teamireland #inmheatróis #endomarchie #EndoMarch #EndometriosisAwareness #endometriosis #adenomyosis #podcast #support #thankyou