Day one of hormone treatment for #adenomyosis
Body: It's almost midnight. Let's go to the gym. No one will be there.
Brain: Anxiety has ended. No pain. Time for sleep. Sleeeeeep.
Body: Hahaha, no. Thermostat to full.
Brain: Fuck you, flesh prison!
Body: Enjoy the sauna, nerd!
Guess I'm online for a bit.
I was diagnosed with endometriosis in my late 30s.
I was diagnosed with adenomyosis post-hyterectomy in my late 40s, although my new consultant suspected it when he scheduled the surgery.
The original gynae consultant discharged me after endo treatment. When I protested I was still in pain, his message was "there is nothing physically wrong with you", with heavy emphasis on the physically.
Yet if he'd read my older notes, there was information about the risk following a botched D&C in my 20s.
So much wasted time, so many years of pain. I'd do overtime at work to build up flexi-leave so I could take at least 2 days off every cycle.
My health is getting me down today. Still no date for my laproscopic surgery and collecting new health issues during the long wait.
So far, on top of #endometriosis and #adenomyosis I've had vitamin D3 deficiency, iron deficiency, high blood pressure, high cholesterol, and a pretty scary partial bowel obstruction.
The NHS waiting list is over half a million strong so it could still be a while. I'm in the 12-week target group for surgery which is currently running at 65 weeks. #chronicillness
Finally got my surgery on Monday for a #hysterectomy
In true Jax fashion, I have spent every spare moment over the last 3 months reading and researching everything about the surgery and risk factors.
The surgery is due to a 12cm #ovariancyst and #adenomyosis thankfully both ovaries and uterus tested clear for cancer.
Scheduled surgery is for a total laparoscopic hysterectomy, but after careful consideration I want them to keep my cervix intact, as I am high risk for future prolapse but low risk for cervical cancer ( I don't have sex with men for a start!).
I've tried to get a telephone conversation with surgeon 5 times over the last 2 weeks and still not had a call back.
After 5 years of medical gaslighting I am not confident or strong enough for a battle to keep my cervix on the day of admission. I'm already not sleeping and seriously stressed about this!
Last attempt to get a callback tomorrow and I will be letting them know that if I don't get a conversation with surgeon by end of day Friday, I won't be admitting myself for surgery on Monday.
It shouldn't be this hard 😭
Woman Discovers the Cause of Her Prolonged Labour After Adenomyosis Diagnosis
Lana Boocock, a mother of two, experienced an agonizing 85-hour labour during the birth of her first child. Later diagnosed with adenomyosis, she realized that this condition, which affects over 10% of women, may have contributed to her difficult childbirth. Adenomyosis causes the lining of the womb... [More info]
🎯 Submit to #MICCAI Workshop CAPI!
📝 Full papers (LNCS) & abstracts
🕵🏻♀️ Double-blind review
📬 Deadline: 25 June
capi-workshop.org
@FAU @ChariteBerlin
#miccai2025
#ReproductiveHealth #WomensHealth #PelvicHealth #Endometriosis #Adenomyosis #PCOS #Fibroids #CervicalCancer
#MinimallyInvasiveSurgery #PelvicImaging #AIforHealth #AIforHealthcare #fairnessinai
Women with endometriosis or adenomyosis are at higher risk of long-COVID symptoms than unaffected women, likely due to immune dysregulation and chronic inflammation. Recognizing this vulnerability underscores the need for tailored therapies or preventive measures to mitigate lasting effects.
#endometriosis; #adenomyosis; #long-COVID; #Immunedysregulation; #chronicinflammation.
Background: Long-COVID is characterized by the persistency of COVID-19 symptoms beyond 12 weeks, and it is probably consequent to immune dysregulation induced by SARS-CoV-2 infection. Immune dysregulation is associated with and probably involved in the pathogenesis of chronic gynecological conditions like endometriosis and adenomyosis. This study evaluated whether the presence of endometriosis or adenomyosis increases the risk of long-COVID, i.e., the persistence of COVID-19 symptoms beyond 12 weeks since infection. Methods: This retrospective observational study was performed at the outpatient service for endometriosis and chronic pelvic pain, at a university hospital. The diagnosis of endometriosis/adenomyosis was primarily based on clinical symptoms and ultrasonography assessment. Data regarding infection, vaccination, symptoms associated with SARS-CoV-2 infection, and their persistence for a minimum of 12 weeks were collected. Results: This study included 247 women, 149 controls without and 98 cases with endometriosis/adenomyosis. Among these, 194 (116 controls and 78 cases) had suffered from SARS-CoV-2 infection. Rates of infection and vaccination were similar in the two groups. The distribution of the SARS-CoV-2 vaccine was uniform across the two cohorts. COVID-19 patients with endometriosis or adenomyosis exhibited a higher prevalence (p < 0.001) of dyspnea and chest pain. The prevalence of long-COVID beyond 12 weeks was higher in cases than controls (42% vs. 12%; p < 0.001) with chest pain (p < 0.001) and ageusia (p < 0.05), forming the most representative symptoms. Conclusions: Symptoms of long-COVID are more frequent in women with than without endometriosis/adenomyosis.
Linza
Tiggy
Associate Professor Siouxsie Wiles
Carrie Hynds
Jax UK
dewgong3602 at KillBait
Johanna P Mueller
APL