Robbert van Eijndhoven

26 Followers
18 Following
567 Posts

Dutch very amateur writer.

#ActuallyAutistic (prefer Identity-first nomenclature). I find myself having one foot on both sides of Mental Healthcare, since besides being autistic, I am also a Peer Advocate.

I am staunchly anti-anti-psychiatry, which nevertheless doesn't make me pro-psychiatry.

New to Mastodon.

Pronounshe/him
PoliticsAnarcho-communim
DiagnosesAS, General Anxiety
Welcome to my twisted ass

starseedjenny: “ advanced-procrastination: “This is simultaneously comforting and uncomfortable ” A clear river flowing with leaves Runs through a red forest of trees Such a vision of maple Is a boon...

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@KatyElphinstone @Susan60 @robrecht

I have a number of points here, that may, or may not, apply, especially to those of us who are late-realised in terms of our autism.

Our internalised ablism may well fall into two camps, or even a combination of them. After spending decades trying to be normal, if perhaps always knowing we were broken and so different really. It can be hard to think of ourselves as being disabled, especially when we've spent so long coping to the point where, on the surface at least and for a given value of it, we've led successful lives.
Over our lifetimes, we may have met and known many disabled people and seen the genuine struggle and difficulties they have in life. To compare ourselves with them, in terms of our own lives, may seem wrong. I know this isn't how it's supposed to work. But, from my own point of view and having had disabled relatives and dealing with disabled people extensively through my work, the thought that I could be disabled is hard to accept, given that my level of suffering and fortitude and sheer strength to get through each day, is nothing compared to theirs. I simply don't feel worthy of the "tittle", whilst intellectually realising that, yes, I am disabled.

Part of the problem, for me at least and I suspect for many of us. Is that there is a distinction in my mind between learning and realising that I was autistic and becoming diagnosed, as in medically, autistic. Just simply realising I was autistic is more than enough. Going on to become officially diagnosed is more a function of necessity. It's about, what would this extra step earn me, rather than, is this the necessary step to take.
In other words, for me, realising I am autistic was literally life changing. It explained, well in certain respects, everything. It has allowed me access to information, tips and tricks that are making my life significantly better than it was. But, being medically diagnosed is something I see no value in at this time. The waiting lists in the UK are long enough, without adding my name to it and making it even longer for those who do need it. I have "done the maths" and spent the years doubting and challenging this realisation with all the rigour of my mind and training, which is considerable, if I say so myself. And finally, at the moment at least, I see no benefit in getting officially diagnosed. There is nothing that I could get, or achieve from it, that could make it worth it.
I know this isn't the same for everyone. That, we all have to make our own decision whether to go on to become officially diagnosed as adults, given, of course, whether this is even a viable option. But, even so, the step from realising you are autistic and the necessity of getting a diagnosis is still there. It could be the step needed for final validation, or getting access to accommodations, or simply having the paperwork necessary for safeguarding yourself. But, it is always the step between realising you are, even if possibly, autistic and having some proof of it and the struggles that come from it.

This is why I think it's important to separate realising you are autistic, from being diagnosed as autistic. The two are actually serving different purposes. Self-diagnosis, or probably better self-realisation, is about finally seeing yourself and hopefully yourself within a community. Diagnosis, is about finally being recognised, or at least defined, by society. The two, aren't actually the same.

Tonight on DICE FRIENDS!
It’s time to dive back into the darkness with Not a Drop to Drink S3E1 ~A Tale of Vancouver Island by Night!

Tune in at http://twitch.tv/loadingreadyrun or https://www.youtube.com/watch?v=rwkDWdomevE

LoadingReadyRun - Twitch

Join LoadingReadyRun's crew of comedian gamers as we hang out and play games!

Twitch

I know I don't exactly have a huge platform, but I want to draw people's attention to this video by Ember Green.

She has some important insights into an issue that I've also noticed in the wider 'autistic community' and she words it better than I think I would have.

https://www.youtube.com/watch?v=ui2h_pHDDmk

"Aspie Supremacy" - A Deep Dive

YouTube

The first vaginoplasty was done in 1898 on a cis woman, and the procedure was well established before the first trans woman patient in 1931. The first penile inversion vaginoplasty was done in 1903 for an intersex woman and wasn't used for a trans woman until 1952.

Trans healthcare procedures are both far older than cis people believe, older than many accepted medical procedures today, and weren't even originally invented for our benefit.

@VeroniqueB99 @gwendolenau

Vee... On behalf of Search and Rescue teams across the world I would ask that you edit the text above your graphic to point out that this is a discredited tip and if people are looking for tips to point them towards
https://www.adventuresmart.ca/the-three-ts/#tripplanning

Or some other credible source of information for rescue situations

The Three Ts | AdventureSmart

I just got my yearly medical bill for my anxiety medication.

I had to pay 7.73 euros on top of the ~50 Euros I pay myself (the rest of the ~170 monthly amount is covered by the government) for insurance monthly.

I sometimes feel I don't appreciate enough how lucky I am living in a country where healthcare is a right and people aren't cash cows for insurance company to milk dry.

Maybe, please, concider boosting. For science.

I saw a post asking people for controversial money tips that would get them canceled and the answer were "billionaires should not exist" and "everyone should have free helthcare". Nah, honey, that's not controversial, that's common sance for most ppl.

So, let's try again. Give me your controversial money tips. And I mean CONTROVERSIAL!

By tomorrow morning I want to be mad of all of you, personally offended by most and on the brink of blocking at meast 5 of you. Concider it a challenge.

Welcome to my life! I'm a scientist who finished the PhD in 2021 and have since then moved to work in the pharmaceutical industry. I recently found out I am #ActuallyAutistic. I have come to mastodon because I didn't want to use twitter anymore (@StrugglingPhDS1) & in the hopes of reconnecting with my friends here. I love textile crafting, cats, music, am an atheist and childfree.

Oh, and:
Abortion is healthcare!

Her: and then I asked him "oh I'm sorry am I interrupting your Minecraft?" And you know what he said?

Me: yes?

Her: I don't know where he got this attitude

Me: what attitude? You were interrupting his Minecraft. He was answering what he thought was a question.

Her: well it wasn't a question

Me: well he's a kid and he's new at learning how to read toxic communication styles

Her: 😡 I'm not toxic

Me: what was the point of the question? How did you want him to respond?

Her: not like that

Me: but if you don't know how he's supposed to respond how the hell is he supposed to guess? It sounds like you just want to be mad at him.

Her: I want him to pay attention when I talk to him

Me: then give him enough time to shift his attention before you start talking.

Her: why do I have to change?

Me: because what you're doing now isn't working? Because you're mad every day and you don't have to be? Because your kid needs you to???