Check out the new #LongCOVID treatment guide from
PLRC & RTHM The guide features 24
medications, & select supplements, procedures, etc.
The guide aims to provide more clarity to patients &
clinicians around the evidence behind potential LC
treatments, in one place.
Link to guide: https://www.rthm.com/treatmentguide
"Study of 41k people finds long-lasting immune system dysregulation after COVID infection, particularly CD8+ T cells (which detect & kill virus-infected cells & cancerous cells).
Strong study - same patients compared pre, during, & after COVID. #LongCovid"
- ahandvanish (Twitter)
Visit our Instagram for all the slides:
https://www.instagram.com/patientled
Dr. Michael Peluso (UCSF) shares why the Patient-Led Research Collaborative is indispensable to Long COVID research and why patient leadership moves us closer to real treatments.
Now through Jan 1, 2026, all donations are matched up to $100K.
patientresearchcovid19.com/donate
Support science that keeps research patient-led and rooted in reality.
In 2025, the Patient-Led Research Collaborative advanced patient-centered science by publishing 14 research papers, engaging in clinical trials and pharmaceutical collaboration, strengthening advocacy efforts, expanding education for medical providers and more.
Our work is far from over.
Help us keep our impact rolling through 2026. Now through January 1, 2026, all donations will be matched up to $100,000, doubling the power of your support.
patientresearchcovid19.com/donate
We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year.
By meeting this goal PLRC will be able to sustain some of our vital day-to-day work through 2026.
This #GivingTuesday, we ask for your support as we continue to advance research that can improve the quality of life for all people with Long COVID.
Dr. Khan speaks with PLRC member, Scripps researcher and Principal Investigator of the LoCITT-T (pronounced ‘lock-it’) trial, Dr. Julia Moore Vogel, about the study using tirzepatide to treat moderate to severe Long COVID.
Listen to the full interview here:
https://www.youtube.com/watch?v=0WZyfudIV5U
Learn more about the study and see if you're eligible to participate:
https://longcovid.scripps.edu/
The Sick Times’s obituary honors Alice Wong, a fearless disability rights advocate and devoted supporter of people with Long COVID.
Link in bio:
https://thesicktimes.org/2025/11/15/alice-wong-disability-activist-and-luminary-dies-at-51/
Visit our Instagram for all the slides:
https://www.instagram.com/patientled
NEW PAPER: A patient-engaged study reveals significant gaps in Brazil's universal health system (SUS) for people with #LongCovid. Co-authored by PLRC researchers, the study followed patients up to 2 years after COVID hospitalization.
Link also in bio:
https://equityhealthj.biomedcentral.com/articles/10.1186/s12939-025-02635-8
Visit our Instagram for all the slides:
https://www.instagram.com/patientled
❗New study shows children reinfected with COVID have double the risk of getting Long COVID❗
This week the New York Times highlighted a new study that provides evidence that children who experience repeat SARS-CoV-2 infections face a higher risk of developing Long COVID, even if their earlier infections were mild or they were vaccinated. The study was run by NIH's RECOVER initiative and published in The Lancet Infectious disease.
Visit our Instagram for all the slides:
https://www.instagram.com/patientled
A new NIH funded EHR study from RECOVER looking at five different models found that #LongCovid incidence has not decreased over time, contrary to common belief. The authors note, "Our findings indicate that preventing and mitigating long COVID remains a public health priority."
Article link:
https://academic.oup.com/cid/article-abstract/80/6/1247/8002322
