I had a realisation today, and I'm not that impressed. I realised I've had brain fog for so long that I... sort of forgot it was there? I mean, I guess it means I've done my best at making do within my means, but still, like. How do you *forget* your brain is impaired? Or did I just answer my own question there, ha ha.

((sometimes, you've got to laugh so you don't cry. this might well be one of those times.))

Still, I got through work in a reasonable time, and have been able to return to resting. Well, trying to complete all the deeds in Pokopia, ha ha. I've almost completed everything I can in Withered Wasteland, and then it's on to Bleak Beach for the same treatment. I've got a note up on my computer next to the Serebii database of items, so I can try to make all the Pokemon have awesome lives (and of course, use as much furniture up as possible).

So yeah.

#deardiary #dailylog #fibro #pokopia #chronicfatiguelife

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

Today's level of existence is 'painfully exhausted'. Like, again, edge of a fibro flare, but a further step into it. Baby flare? Could be. But at least I've done the things I need to do, so that's something.

I'm incredibly amused by my youngest right now. While they are in the SEND (special educational needs and disabilities) program due to their stutter, the head of SEND at their school was surprised to find out that their autism hadn't been diagnosed. Like, child is clearly autistic, water is wet. *laughs* They've sent a referral so she can get properly diagnosed, but in the meantime, she straight-up invited herself into the autism centre in the school -- and today, we got an email inviting her to go on an out of school trip with them later this year. She herself has said that they are happy to have her because she's befriended several children in that part of the school, but it just gets me in the heart that she gets included with her people even without the official label.

What else... ordered another loom last night -- third time lucky? I ordered it from the website of a craft shop in Buxton, so probably hopefully will be good. Watch this space or something, ha ha.

#deardiary #dailylog #fibro

it is very difficult to do my job when the pain in my shoulders is so intense and my arms are too heavy for my body to hold up.

#Fibro

Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohort

https://www.sciencedirect.com/science/article/pii/S0022399926000930

Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.

I need to read full paper to check their interpretations

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs

Saw my GP about the rejected Gyno referral which said my hormonal issues are likely perimenopause & recommended HRT so have a trial of that.

I also picked up my referral letter for rheumatology (as medical evidence for PIP & DSA) & it says #fibro. The GP has basically said "pretty sure it's fibro, please confirm."

I've been crying in a coffee shop with my beautiful girlfriend. It's a lot to process & I was kinda hanging onto it being #LongCovid as there is at least a chance that might improve.

From Turkey

"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"

https://www.mdpi.com/2077-0383/15/3/1098

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#Fibromyalgia #Fibro #FMS #FM