Arend (they) 🏳️‍⚧️🍉Aug 27

Living with fibromyalgia is like having at least one of the following, everyday: headache, stomach ache, muscle aches, nausea, pins and needles, ringing ears—every single day. It may be all of the above. It may be a low-grade version of just one.

When you've got a flare-up, tomorrow is likely to roll an entirely different combo. Even if it was predictable, you're too brain-foggy to try.

And these aren't even all my symptoms lol.

#fibro #ChronicIllness #mecfs #LongCovid

Chronic Illness Humor FunnyAug 27

There's no heating pad setting that will ever make me happy

#chronicpain #chronicpainmemes #chronicpainhumor #ehlersdanlos #fibro #fibromyalgia #rheumatoidarthritis #painmemes #pain #chronicillnesshumor #chronicillnessmemes

Sp4rkR4t Aug 25
Coming to the end of the 3rd full day on my pain meds, and while the pain is by no means gone it is in the background, I'm more awake, my balance has improved, I went to the shops twice today, didn't think anything of it.
The doctor said not to make any changes for the first couple of weeks but I'm already looking at swim headphones, new trunks and high end GPS hiking watches, I even had a look at the latest eMTB's, an old ill fat bloke can dream after all. #mpn #mecfs #fibro #chronicillness
Sp4rkR4t Aug 24
Feeling alot better today, managed to make lasagne from scratch and I don't even feel that exhausted. Another thing that's improved is my balance. #mecfs #fibro #mpn #chronicillness
Show threadSp4rkR4t Aug 23
Update on this, after consulting with my other specialists they have changed my meds to something that won't affect my bloods, been on it since yesterday afternoon and while it might just be a good day I can walk up and down the stairs in about half the time it usually takes me, it's also changed the dizziness I have it's feels more floaty and less sudden change of direction.
Just a bloody relief to have something for the complaint I initially made 7 years ago. #mpn #mecfs #fibro #chronicpain
Chronic Illness Humor FunnyAug 22
#chronicpain #chronicpainmemes #chronicillness #chronicillnessmemes #chronicallyill #autoimmune #pain #fibro
Chronic Illness Humor FunnyAug 22

DOCTOR: *diagnoses me with FIBROMYALGIA."

ME: Okay. But at least you know how to help me now.

DOCTOR: Oh honey, no.

#fibromyalgia #fibro

Sp4rkR4t Aug 22
Had a follow up with #pain doctor today, they've prescribed me some meds to inhibit the base level pain, I've picked them up but she phoned to say don't take them yet she needs to double check it's not going to adversely affect my #mpn.
All this time waiting for someone to actually address the thing I went to the doctors for in the first place to finally be given something that might help and then getting a call to say wait is... absolutely typical at this point. #fibro #mecfs
Tom KindlonAug 21

ME/FM Society of BC Article: When the Heat Hits: Managing Flares and Symptom Spikes

https://www.mefm.bc.ca/post/when-the-heat-hits-managing-flares-and-symptom-spikes

Screenshot from the Massachusetts ME/CFS & FM Association August Newsletter

@chronicillness
@spoonies
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Arend (they) 🏳️‍⚧️🍉Aug 19

I'm learning to cope with my #fibro / #mecfs by adopting the phrase, "Do it tired, just don't overdo it." It seems to work for things I have to do that I'd rather not, like cleaning a mess in the home, and things I don't have to do but rather would, like practicing music.

I'm curious if other folks with #ChronicIllness or #disability can relate, and I'd love to hear what you would have to say on the subject, as I'm fairly new to it.