New from Italy:
Case Report: The intersection of psychiatry and medicine: diagnostic and ethical insights from case studies

Free:
https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2025.1576179/full

Looks look sympathetic and interesting on a quick skim

@chronicillness
@spoonies
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

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I found this blog post interesting.

The research found 3 themes relating to loneliness in chronic illness.

It then mentions a writing exercise one can do to analyse these in your own situation.

https://www.psychologytoday.com/ie/blog/chronically-me/202504/the-link-between-loneliness-and-chronic-illness

#chronicillness #chroniclife #Spoonielife #hiddenillness #invisibleillness #Spoonies @chronicillness
@spoonies
@disability
@longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots #dysautonomia @dysautonomia @mecfs
#MEcfs #CFS #PwME

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"Sleeping Well with Chronic Illness" by Ciara Breen. This was organised by the Irish ME Trust

Recording here:
https://youtu.be/15SuEe5UlUY

Slides here:
https://1drv.ms/p/s!AoHfldspRkWU14MZ3X5c8Vz4gr5-VA?e=Pm6gIx

My informal notes:
https://1drv.ms/b/s!AoHfldspRkWU14MsVPPzR94Y4UmWqw?e=d5pKRg

#Sleep #chronicillness @chronicillness
@spoonies
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

(Worcester, Massachusetts)
Healthy Controls and people aged 12+ with ME/CFS, #POTS, #EDS, long Covid, etc sought for research study

Image is from MassME April Newsletter

https://www.massmecfs.org/newsletters/922-2025-04-april-newsletter

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome @pots @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

"Cards2Warriors has a special program called Happy Mail, where they send snail mail cards to those [who are ill] who need encouragement & cheer"

Links:
https://www.cards2warriors.org/
https://www.cards2warriors.org/happy-mail

Image from Institute for Neuro-Immune Medicine e-bulletin

#chronicillness @chronicillness
@spoonies
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll @mecfs
#MEcfs @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

I gotta make recording easier for myself, especially with my spoons these days. Most days #fibro wears me out before I can get started.

As much as I love capturing guitar and voice at once, I think I gotta start doing more overdubbing of the two separately, and I'm struggling against the shame of doing so as a folkie. I'm sure I'll get over it.

Fellow #DisabledMusicians, please drop your tips for music-making.

#disabled #DisabledMusician #DisabledArtist

Hi All, I don't normally leave it this late to get back on the socials after a Sunday. But my pain levels are terrible.

One of the main reason is that the pharmacy has...three times failed to get the right slow-release medication to us.

I take set doses of pain and muscle-relaxing meds through the day. But I also have slow release ones that work between the doses (which are not effective after 2½-3hrs).

The slow-release one is strong so, currently I'm struggling to ignore the #fibro #pain.