The Chaotic Good đłď¸ââ§ď¸đłď¸âđđHey, folk who have #invisibledisabilitiesâŚ. How do you explain to people that you donât have the same body capabilities/endurance/needs as folk who donât have the same challenges you do?
Iâve been thinking a lot lately about how to better explain to folk that my body is always operating at reduced capacity because my #donotdie medicine slows my heart rate and thus, while Iâm fit and strong, my body tires more easily than it might otherwise do.
I can say âoh, I have #LQTSâ but folk donât really get the implications. I can say âremember that person who died from drinking an energy drink/super caffeinated beverage/too much coffee?â And they get that⌠but⌠It doesnât translate to âI GET FUCKING TIRED EASILY AND SOMETIMES I JUST CANâT FOR A FEW DAYS BECAUSE THE MEDICINE THE KEEOS ME FROM HAVING A CARDIAC ARREST ALSO GIVES ME SUPER LOW BLOOD PRESSURE AND LOW HEART RATEâ
Iâve had some friendships end because people thought I was always bouncing because I didnât want to hang but the reality was I was just exhausted⌠and some folk donât get that I sometimes have to change plans because bodyâŚ
I canât be the only one
Thoughts?
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