What do we know about #MyalgicEncephalomyelitis? We know a lot more than many realize.

See latest article from View from the Trenches of Myalgic Encephalomyelitis about the International Consensus Primer.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/myalgic-encephalomyelitis-ic-primer

View from the Trenches of Myalgic Encephalomyelitis

Latest article discusses research that shows a difference between the immune system issues seen in Severe ME patients compared to immune system issues seen Mild/Moderate ME patients.

#myalgicencephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/is-severe-me-a-separate-disease?r=deavh&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true

View from the Trenches of Myalgic Encephalomyelitis
News - Jan 6, 2025:

-ME Global Chronicle # 51
-Updated Research Lists
-View from the Trenches of ME Table of Contents
-ME-ICC Info Table of Contents

#myalgicencephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2025-jan-6?utm_source=share&utm_medium=android&r=deavh

View from the Trenches of ME - surviving holidays with #MyalgicEncephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/holiday-season-thoughts?utm_source=share&utm_medium=android&r=deavh

New article from View from the Trenches of ME discusses the difficulty #pwME have had due to insurance companies denying adequate care.

#MyalgicEncephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/insurance-and-myalgic-encephalomyelitis?r=deavh&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true

View from the Trenches of ME

There is nothing easy about bridging the gap between what doctors "think" they know about ME and the reality of ME.
This article is about some useful tools to help bridge that gap.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/myalgic-encephalomyelitis-diagnosis?r=deavh&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true
#MyalgicEncephalomyelitis

Article from View from the Trenches of ME covers the new FUNCAP27 questionnaire.

It takes post-exertional neuroimmune exhaustion into account when assessing function. Useful for communicating with Drs and applying for disability.

#MyalgicEncephalomyelitis
https://open.substack.com/pub/colleensteckelmeiccinfo/p/funcap27-functional-capacity-questionnaire?utm_source=share&utm_medium=android&r=deavh

News article from View from the Trenches of Myalgic Encephalomyelitis

Dr. Speight video about ME & call-in program hears from ME patients

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2024-aug-27?utm_source=share&utm_medium=android&r=deavh

Content warning.

News about the outcome of the inquest into Maeve's death.

"After a two week inquest the assistant coroner published a report finding that the cause of Maeve’s death was malnutrition because of ME."

#SevereME #MyalgicEncephalomyelitis

https://open.substack.com/pub/colleensteckelmeiccinfo/p/inquest-into-death-of-maeve-boothby?utm_source=share&utm_medium=android&r=deavh

View from the Trenches of Myalgic Encephalomyelitis shines a light on #MyalgicEncephalomyelitis and #SevereME

https://open.substack.com/pub/colleensteckelmeiccinfo/p/severe-me-day-8824?utm_source=share&utm_medium=android&r=deavh