In the UK, 89-97% of autistic adults aged 40+ may be undiagnosed.

That's a whole generation of people who've been blamed for traits they naturally had that went unnamed. 😢

#LateDiagnosedAutistic #Autism #ActuallyAutistic #Neurodivergent

@KatyElphinstone

The fun thing is, that those of us from these generations probably started with the worst understanding of what autism is and the more certain belief that this is something that only doctors can diagnose. Which would make us more likely to want to go through that process, rather than rely on self-diagnosis and our own research to come to any realisation.

Of course, we've also often had the most experience of the fallibility of doctors and perhaps are less likely to trust them, after being falsely diagnosed with things before. Which might explain why the numbers seeking this path are so low compared with younger generations. Also, the gatekeeping of said doctors, who seeing our masks and age are perhaps more openly against recommending it.

And perhaps, at the end of the day, it is our age that is the biggest factor. The masks and success we might have achieved through life, holding us back. The realisation that an official diagnosis really doesn't do anything for us and the lives we have lived, always leaving enough room for caution, if not doubt about taking one.

@pathfinder

Yes indeed, to everything you've said here. I think it's good that this conceptual and practical chasm between the medical (and traditionalist) paradigm is becoming more and more evident.

As the greater the clarity, the more sense we can make of what's happening - and what has happened.

I wonder if people here - us - are fully aware of how much our own words and actions (and by this I mean simply the fact of being a community and connecting with one another) are contributing to a) highlighting the illogics, and b) shifting the paradigm.

Towards something that gradually makes more sense.

@KatyElphinstone @pathfinder I see the ripple effect of our online communities and stories for myself and for others reading me (I get testimonies). I can’t wait to see the effects in the society for the next generations…

#ActuallyAutistic #AuDHD

@adelinej @KatyElphinstone
This is why I love this community so much. The sharing of support and information that makes such a huge difference for us. And hopefully many others down the line.

@pathfinder The English speaking community is amazing! ❤️

@KatyElphinstone