Edit: Thank you all for the help ❤️
I've got a lot of replies, and I passed on a subset (for now, I don't want to overload them either).
You are truly the best 💜

Fediverse: what are good resources to send to people that just got Long Covid / ME / CFS ?
They don't even know it is a thing that exists.

I would prefer something that does centers "ME/CFS" as opposed to "Long Covid", because in the context of the person that needs it, they might get less support mentionning covid.

I know I'm asking the people with no spoon to do some work, but I also know that you'll have the better things than google/ddg.

Ziness, books, websites, videos, any medium.

Boosts are very welcome  

Hashtag salad:
#LongCovid #MECFS #ME #CFS

@mxfraud
Two fact sheets from the Science 4 ME forum (@s4me)

1) What is ME/CFS:
https://s4me.info/docs/WhatIsMECFS-S4ME-Factsheet.pdf

2) Post-exertional malaise (PEM):
https://www.s4me.info/docs/PEM_Factsheet.pdf

The CDC has this useful handout but I see in your profile you are from the UK so not sure if a USA source is helpful.

3) https://www.cdc.gov/me-cfs/pdfs/toolkit/What-are-MECFS-Symptoms_508.pdf

For more detailed info you can check out the MEAction website (they have a UK chapter)

https://www.meaction.net/what-is-me

#MEcfs #PwME

@ahimsa_pdx @mxfraud @s4me +1 to all these. S4ME and ME Action both helped me personally when I got long covid (or post-covid ME/CFS).

If the person's doctor doesn't have a clue, or they just want to jump into the fine tradition of ME/CFS patients reading journal articles, I also like the physician practice guide that ME Action put together with the Mayo Clinic:

https://www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext