AudhdDespiteNoisyAbleism 🇨🇦

Having a rare genetic mutation is so much fun. /s

This morning I had an appointment with my surgeon to talk about a probable surgery to reduce my risk of colon cancer due to precancerous polyps due to the mutation. I have more than 100 and so a total colectomy has been suggested to me.

On a support group of carriers of this mutation someone in the US shared her experience with me. She had 300+ polyps removed, kept her colon, and has a colonoscopy every year (it is the same frequency for me).

My quest is now, from 🇨🇦, trying to get a second opinion from 1 of the gastrointestinal docs at the University of Pennsylvania in #Philadelphia. 💪

#cancer #PTEN

Jun 10 at 1:18amWeb
Show threadAudhdDespiteNoisyAbleism 🇨🇦Jun 11

Things are moving fast thanks to my hyperfocus! did some research and it seems that removing so many polyps is not standard in Canada. Probably because from what I’ve seen in my province MD are paid only for 2 or 3 polyps removal…/s (They are paid depending the number of acts they perform).

Anyway, I have read what it could be like to live without a colon, things that no one told me of course. 🙄 I am already dealing with too many things, I am going to keep my colon and having a colonoscopy every year. Plus I am going to try to loose some weight to help the entire situation.

#cancer #PTEN

Show threadLizetteJun 10
@adelinej they are good docs.
Show threadKevin DavyJun 10
@adelinej
Wishing you well with this and hoping you can get the answers you seek. 🤞 💪
Show threadjessicaJun 10

@adelinej

Good luck, I hope you get what you need 🍀🤞

Show threadKaja Jun 10
@adelinej
I hope your quest will be successful. 🍀
Show threadlaen 🌿Jun 10
@adelinej 💪 much love and hope and courage to you. i hope the upenn doc is helpful