RE: https://toot.wales/@alexisbushnell/116333926236639109

So I saw my GP to find out why rheumatology rejected me.

Turns out it's because they'd already rejected me before... They ignored the new information we sent in and my GPs comments.
GP is not happy.

He is re-referring me again.
He said to speak to the long COVID clinic physio on Friday and ask if he can write something to support the referral.
He's also going to speak to the pain practitioner I saw and see if she can get me in via the pain clinic.

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#ChronicIllness #NHS

He even said that if I go private it needs to be an NHS rheumatologist that I see privately and that if they diagnose me then that's grounds for a complaint.

He's prescribed Naproxen cos it should help, if not as much as the steroids, and if it does help it provides more evidence that it is inflammatory.

He also said I can email him if they work and he'll put them on repeat, and he'll email me when rheumatology reply.

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@alexisbushnell I hate this all so much! 

But your GP sounds good, which does help.

@bright_helpings yeah it's The Worst!

My GP is incredible though, I'm so grateful for him. So many people are stuck with awful GPs who don't support them while also dealing with the rest of it too.

@alexisbushnell so glad you are getting some support at least 🤞
I've know people take steroids for decades. Its not ideal but better than the alternative sometimes.
@Florapis yeah you can take them but my GP isn't allowed to prescribe them for more than 2 weeks unless I have a diagnosis that requires them. So basically if rheumatology refuse to see me, his hands are tied.
@alexisbushnell
Hopefully this time will work. Far too much always depends on GP pressure and the sort of persistence from the patient, that even a fit person would find it hard to maintain. And people wonder why it's so unfair and people struggle to get the right help.
  🤞 
@pathfinder thanks. Yeah, I am so lucky to have found such an amazing GP. I'm so grateful for him!