Today, well, its been one.

Struggled to get up first thing.

Sunday, so chill day, no fucks given.

Oh, outing for ice cream.

Body says no pretty quickly.

Keep walking I say.

More spasms.

Harder.

Friend says enough.

I say no.

Keep going, eat ice cream.

Pains get worse.

20 minutes to walk a 2 minute walk.

Ouch, I can't do this.

Get fish and chips for the child.

Car and home.

Distractions, spasms, pain, too much, need home.

Home, safe, food, no pressure.

Spasms worse, floor is friend.

Nap for a while. Child has eaten my food (its cool).

Stare at screen.

Wonder how many other people have to plan energy and toilet trips.

Wonder if I can realistically manage a 5 mile walk.

Wonders just how small her world is now.

Wonders about.......yeah, big thoughts for a body that is insisting on limiting it.

I am so done with all this chronic illness thing.

I'll be fine in the morning.

For now, I am thinking hot water bottle, tea, ignoring the outside world. I have a safe cosy bubble right now.

#Disabled #ChronicIllness #FND

@JustFi 🫂 Most people with moderate ME can probably empathise with the planning and frustration. Hope you have a better day tomorrow.