English follows.

Une question à laquelle je réfléchis beaucoup depuis 2 ans et de plus en plus avec tout ce qui m’arrive récemment.

Qu’est-ce que c’est la qualité de vie pour vous? Je ne sais pas quoi y répondre pour le moment. Et la définition est bien sûr unique et propre à chaque personne, et varie dans le temps.

Bonus si vous êtes aussi autiste et/ou TDAH, car l’incertitude de plus en plus grande concernant ma santé n’est pas toujours facile à vivre...

#PTEN #Cancer #handicap #MaladieChronique

A question I've been thinking about a lot for the past two years, and more recently so with everything that's happening to me.

What does quality of life mean to you? *For myself I don’t know for now.

The definition is, of course, unique and specific to each person, and it changes over time.

Bonus if you're also autistic and/or have ADHD, because the growing uncertainty about my health isn't always easy to cope with...

#PTEN #Cancer #disability #chronicillness

@adelinej quality of life in my current phase of life mainly comes from the ability to control/steer my life according to my needs and sometimes even my wishes.

After having a baby, losing most of my freedom through that (no parents or friends to support us) and completely burning out in the course of raising it, I now cherish every bit of freedom I get back. That includes working longer if needed!

I also enjoy the privilege of being a part-timer with no fixed work times (in principle. In practice, when you work together with others there are, of course, schedules to stick to. But they're not something that can't be shifted around a bit when needed)

And on good days I even sometimes have enough creative juice left in me to do arts, crafts, or build something.

@adelinej also, the relationship that I have with my kid is a net positive for quality of life now. The relationship with my husband could be better, we both work too much most days. But I still can't imagine a better person to spend every day with.