Mastodawn

Good morning folks.

It was a lot cooler last night and I slept so well, I also started the Travis Baldree book that was sitting in the tbr pile, so the child will get the book soon and can stop nagging me for it.

Today is FND awareness day in the UK. Trust me to get diagnosed with it, just in time for the awareness day 😂 Honestly wish I looked as healthy as purple sparkle brain person in the picture 😂 For me, FND is pretty shit and affects every minute of my day, the more tired I am, the worse it is. Some days I can "trick" my body into behaving, but those days are few and far between. The biggest impact it has on me is functional limb weakness and speech difficulties, oh and the tremor is pretty bloody awful too. The gaslighting from the GP for years has been pretty awful too, had me thinking I was losing my mind. It took me being hospitalised with a suspected stroke for my GP to take me seriously and refer me to neurology, then the year long wait for the appointment. Getting diagnosed was a huge relief, even if neuro don't think I will get any better, at least they think I won't get any worse (or not anytime soon). So yeah, I'm going to share about awareness day, and then promptly forget it and go about my day.

Time for more coffee, Cozy Grove and then I might venture outside.

Have a lovely day everyone 😊

#GoodMorning #FND #FunctionalNeurologicalDisorder

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Phil Thane ✅1d ago

@JustFi One of our sons -in-law has FND. Started about the time their 2nd daughter was born and is triggered by sudden loud noises. Like a baby crying. Later an excited toddler screaming. 10 years on the daughter is a little quieter and the SiL hasn't had a seizure for a couple of years. Other symptoms persist though, especially fatigue. It's been hard for him and his wife and kids.

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Fi 1d ago

@pthane Oh no, that sounds awful for him and must have felt awful with the trigger. I have no idea what triggered mine, although since the "not a stroke" incident last year, the weakness and fatigue are a constant now. I'm lucky that my son is older and understands it, the tables have almost turned from me being his carer to him being mine. Noise can be a huge trigger for me also, yesterday was a very quiet day in the house and today I feel almost normal.
Thank you for sharing your SiL experience with FND.

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Phil Thane ✅

@JustFi Having grown up with daddy always being like that the little one is good with him when he had a seizure she used to sit by him and pat or stroke him until he recovered. Nice to see though it was usually her behaviour had set him off! She is a bit boisterous and a total drama queen!

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Fi 1d ago

@pthane My son is really good with noticing when I'm struggling and helps more than he should need to, especially with things like supervising me cooking - I'm apt to walk away and leave the cooker on. He is also good at reminding me to rest.