what we thought we knew about autism and... whatnot

'For decades, researchers had been measuring the wrong thing. Conflating communication style differences with empathy deficits produced dramatically inflated effect sizes and an illusion of empathy impairment'

#autism #actuallyAutistic #science #psychology

https://www.psychologytoday.com/us/blog/positively-different/202601/what-the-world-got-wrong-about-autistic-people

What the World Got Wrong About Autistic People

For decades, autism research compared autistic people to animals, denied them moral sensitivity, and assumed autistic traits made them miserable. All wrong.

Psychology Today

@oscarjiminy the conclusion echoes criticisms I've made of ADHD (and neurodivergent) characterization: so much of it is defined by what assessors think is a problem, not what the individual being assessed thinks is a problem.

My brother and I were both diagnosed with ADHD as adults. Looking back, the evidence was all there when we were younger but because neither of us "acted out" or noticeably struggled academically it wasn't brought up. Even the name, attention-deficit hyperactivity disorder, is biased towards the impact it has on others. My problem isn't that I lack attention, it's that I lack of control of attention. Sure, that makes it harder to concentrate sometimes, but it also means I miss meals or don't sleep because I can't interrupt myself. Not staying on task is what teachers care about though, so it is what gets focused on.

@oscarjiminy
This alone should be shouted about: "researchers had assumed impairment, they found autistic people applying moral principles more consistently—even to strangers, even when costly. In a world increasingly damaged by in-group bias, this isn't a deficit; it's a collective-level fail-safe feature."
@Andii @oscarjiminy I came here to post this exact quote.

@Andii @oscarjiminy so here's another gem:

researchers interpreted autistic moral consistency as "undue concern" about ethics. Because of the enduring assumption “autism=bad,” they pathologized conscience and treated principled behavior as a symptom rather than a strength.

@grant_h @Andii @oscarjiminy What this is essentially saying, is that failures to conform to a core defining principle of conservatism (in-group must be preferred), was ”developmental failure”.

It tells more about the unmatched levels oppression practiced by western socities at large, than it does about neurodivergent people.

We judge people who fail to be good imperialists as defective.

@grant_h @Andii @oscarjiminy

The attitude also implies

Social conformity “normal” = morals

It seems like the very wealthy, especially the most notorious one at the moment, likes to clothe himself in autism to lay claim to specialness and characterize his outrageous behavior as autism, but the accurate description would be dark triad.

@Andii @oscarjiminy @wearywulf describes this in their posts.
@Andii @oscarjiminy Unusually robust moral integrity is a common feature of autistic folks that I know.
@Andii @oscarjiminy This has been the ultimate point of tension in every group I've been a part of. Also a good way to find like-minded people!
@oscarjiminy
« Incapable of empathy » Well, OK [ looks at what's happening across the world... ]
@adrianmorales @oscarjiminy Projection of IMAXian proportions.
@oscarjiminy "Instead of empathy deficit, autistic people demonstrate a broader moral concern, extending fairness beyond their tribes. Where researchers had assumed impairment, they found autistic people applying moral principles more consistently—even to strangers, even when costly. In a world increasingly damaged by in-group bias, this isn't a deficit; it's a collective-level fail-safe feature." Yes! Great article.

@oscarjiminy

The British series 'Patience' has a go at it, but the French original it copied "Astrid" was far more into details. Certainly a lesson and worth a watch for us 'normies.'

@oscarjiminy It reads as "autists refuse to be moral hypocrites, which is so out of norm that we should medicalize it."

"The true measure of any society can be found in how it treats it's most vulnerable members." Mahatma Ghandi

@oscarjiminy I'm still unpacking all the nuances of my own autism & ADHD, but one thing's for sure:
I have so much empathy it's crippling, and I lock it down by compartmentalising in order to survive and keep my sanity.
The other points in the article ring true for me as well, so I'd say it's an article more people need to read - including the various therapists I've seen in my life.
@drewtowler @oscarjiminy Once upon a time I had a therapist point out that I just might be over-extending empathy (I don't remember her exact phrase) when I was talking about being compassionate to people who were treating me badly and thinking in terms of how they got where they were, to the kind of person who would do that to another.

@naga @oscarjiminy I like "over-extending", it's nicely descriptive.

Empathy (especially difficulties regulating it) can also be related to trauma responses in CPTSD, which so many autistic people (including me) also have.

@drewtowler @naga this's often occurred to me too

i've not had a diagnosis and although i'm 100% certain i presented with autistic 'traits' as a child i'd always understood it as a trauma response.

thinking about it in the past few years though (and reading some of these responses) i am identifying strongly with some comments and am beginning to wonder

@oscarjiminy @naga And it doesn't have to be one or the other. These things tend to conflate and merge.
I used to stay awake wondering whether some trait or other was due to my autism, my ADHD or my CPTSD. I lost a lot of sleep that way and I don't do it any more, because I don't think it matters.
I think the word "mishmash" is the most honest way to describe neurodivergence (with its attending CPTSD). I'm a mishmash and I'm OK (but not a lumberjack, that would not be OK).

@drewtowler @naga yeh i came to the same conclusion – it doesn't matter in any kind of substantive way but this goes to autism as a diagnosis proper imo

is it little more that a constellation of characteristics as distinct from some kind of ontological condition because if it is then that's just human diversity and we should perhaps just work to dilate that aperture and be more inclusive broadly imo

@oscarjiminy @naga Constellation of characteristics is a nice visual way to put it (way better than mishmash) but this constellation is brought about by a series of neurological differences, & that's the important thing for me. It's more than just human diversity.
I might, if pushed forcibly, even go so far as to say that I see neurodivergence as a mutation.
Usual disclaimers: I'm not a medical person or in any way qualified to judge any of this. I'm just an AuDHD bloke who makes web apps.

@drewtowler @naga i think mutations need to have genetic markers

neuro difference is bound up with psychological elements. there may be material aspects but if there are i'm pretty sure we don't know what they are

this goes to trauma manifesting in neurodivergent traits. outside of brain trauma/injury neurodivergence can be brought on by traumatic experience. that's not about spontaneous mutation in response to stimuli

@oscarjiminy @naga I'm officially out of my depth now... my understanding was that autism, at least, was an inherited genetic differemce and involved physical differences in the brain.

Having said that, my ADHD changed and intensitified after I had a traumatic brain injury some years ago. Which kind of blows my genetics-only argument out of the water.

Where that leaves us I don't know, but you're right that mutation probably isn't the right word.

@drewtowler Ha! I'd have to say that last line probably qualifies you. in the mishmash. @oscarjiminy

@oscarjiminy *looks up the Empathy Quotient*

*...flabbergasted at how badly its questions relate to what it's supposed to measure*

How does *how often you dream* measure empathy?

Edit: OK correction, apparently 1/3 of the questions are control questions that are not meant to measure empathy.

@oscarjiminy Anyway. Wow. Researchers really did take an approach I would paraphrase as: "autistic differences from allistics are inherently bad so let's study what those differences are so we can figure out what to call bad"