lez-anya

After the Chronic Migraines, Light Sensitivity was the next big symptom to develop for me.

Much in the same way that I've always suffered with migraines, I've always been very sensitive to light...but when all of this started with my body, it all kind of ramped up to an unmanageable, intolerable, chronic level.

I have my curtains and blinds closed most of the day, if not permanently. I removed the bulb from the "Big Light" in my room, to ensure nobody could ever turn it on unexpectedly. When I settle down for sleep, I have to cover even the smallest source of light to stpp it from peneterating my eyelids.

Bunlight, my bunny shaped nightlight, is set to the darkest red I can get her so she still illuminates the bad corner, but the light isn't as disturbing as it could be.

And I have only just come to the realisation (that sparked my need to write this post) that the brighter the light I am exposed to, the quicker my limited energy drains.

I keep my phone screen quite dark most of the time, occasionally having to increase brightness to make out detail in images, etc, and I noticed a little while ago that I was really starting to crash with it turned up just a little bit.

Brightness turned back down and, while obviously I'm still drained, I can feel myself more capable of...like, a little bit of life.

#MECFS #LongCovid #NEISvoid #LightSensitivity #Spoonie

Feb 9 at 1:44pmWeb
Show threadCiara 💖Feb 9
@TheSunnyOne I think most people don’t even realise that light sensitivity is a thing that people have to deal with. I have nowhere near the sensitivity you do but it really tires me out too 🫂💜🫂💜
Show threadlez-anyaFeb 9

@ciara yeah, for a long time we just thought our level of sensitivity was normal.

But we've come to realise that not everybody can navigate their house in the dark, etc.

People always accused us of overreacting to the light, and we realise now that we're just hyper sensitive to it.

Show threadCiara 💖Feb 9
@TheSunnyOne yeah I’ve been accused so many times of overreacting to so many things that i now recognise as ND traits including this 🫂💜
Show threadMcKenzieFeb 9
I know that feeling so well. I started logging my symptoms and it actually helped me spot patterns I'd missed for years. Started logging everything in the CareClinic app, finally seeing connections.