Unverified Undiscovered Unknowns:
Far too many people have been suppressed for appearing unacceptable to social norms. Who among them could have given us the cure to cancer? But instead of humanity benefiting from their mind, is institutionalized for having a voice that is too loud due to muscle control difficulties.
I believe we need to be more flexible with variants of human behavior in order to progress further with technologies.
1/?
Narrowling the range of acceptable behaviors has detrimental effects on human technological development.
Displeasure and strong objection to behavior variants may push people to object induviduals who may have new ideaologies within their minds, but due to their appearance or performance, can be supressed under peer pressure of modern day society, inventions and creations existing within minds of people who could help us prolong our lives, if only they were accepted. Instead, rejected.
2/?
Where do my thoughts come from? My experience a few weeks ago where a nurse was focused on getting me to behave a certain way that I could not do (lower my voice, hold my hands still) and finalized her job over me with jabs of hadderol (which make me restless, contrary to the nurse's belief it would "calm" me down) and put into a "hold" in a mental ward, meaning I had no rights to my own freedom, an alarm hidden in my bed if I were to get off.
Why was I put into that restricted hold?
3/?
Everything I was telling them was the whole truth and nothing but the truth, but due to my movements, and voice volume, voice pace, I was dismissed as a psycho, shoved into a mental ward, my autonomy denied.
I didnt hurt anyone. No touching them, tho they touched me, jabbed me with stuff I repeatedly told them not to give me anti psychotics.
This strict adherence to their wishes for specific behaviors i cannot do... is restricting the ideas I have in my brain that could benifit society.
4/?
Imagine if humanity treated Steven Hawkings according to his outward appearance?
As if he were a baby, wouldnt that nurse do so, like a baby, here is some diapers now be a good boy Stevie.
I feel treated like they see me as a baby, or as a demonic bully, neither being true, both being demeaning to my potential.
I have so many ideas, but i cant bring much of these ideas to life because of the restrictions put on me based on how someone else perceives me.
5/?
I dont want people to misjudge me.
Most people have misjudged me.
I spent the first thirty years of my life trying to do the things people tell me to do, what people expect me to do, trying and trying I did to find that place where I was not treated like a freak, like a weirdo, like a defective human... I tried and tried, but I could never reach that level of an even plane with people my age.
I hated myself for thirty years.
I am 47 now.
What changed?
I stopped ignoring/supressing myself.
6/?
Accepting me as I am, following what I like, avoiding what I dislike, and having a strong solid grounding to reality since I was two years old... I am not, in no way, a psycho.
Nurses have labeled me with so many wrong diagnosises, and just in general when people are service providers, they tend to not believe a dang word I say, especially in health care. This assumption of dilusional/malice perceptions of me, has been a frequent perception, and has never been true.
7/?
But eh, nurses, go on and keep labeling people psychotic and paraboid, why do this at all huh? Do you get paid for every human you get put into a mental ward? What is the deal with this locking up of people who dont perform like a perfect obedient standard normal person...
How much potential is being locked up/silence/eliminated because they cant speak the speak that nurses seem so obsessed with.
I asked for communication in writing. I brought pen and paper.
8/?
She refused. Continued to focus on speech.
What if Steven Hawkings was presented to her, and he could not speak for her. What then?
Why is using a mouth with a tongue and all these fine motor control things.... so damned important?!
Not allowing non-speech forms of communication is hindering human progress.
9/?
Dammit.
And they think I'm obsessed? How about them and their obsession with speech.
I communicate a hell of a lot better in writing. My speech controls have been insignificant in comparison to my hand controls.
I have been locked up in mental wards many times,, tackled by cops, strapped to gurneys, drugged with antipsychotics without my permisson... WHY?!?!
Because my speech is unacceptable to them.
10/?
If only they let me write.
If only they valued writing.
The suffering I've had to suffer, because my speech isnt up to standards.
Dammit.
I get supressed, silenced denied autonomy, locked up, because i dont have 'proper' speech.
I never had proper speech.
Never.
I struggled to speak, to get my mouth to make the sounds right, for years, seven when I got the last sound right, these fine motoro controls, are not up to standards.
Standards, destructive standards.
11/?
I cant work because of my speech, flunked, because of my speech. Can I get a Dyspraxia diagnosis please?!
Really bad of society to supress people who dont speak properly.
Stephen Hawkings.
I wish I had that level of respect for alternate communications.
What is the point Green huh?
Points:
Suppressing people who dont speak properly, is really nasty, nasty for the suppressed and nasty for humanity.
Please let people use the communication that is best for them.
Texting exists.
/drop mic
12/
That would indeed be a difficult difference to navigate. Our societies do rely on speech to indicate - communicate - mental state, capacity, and intent.
It might be preferable to self-identify as "mute" and then rely on a notepad or something more creative to allow you to communicate in the fashion that is effective for you. Since you don't have Hawking's physical limitations, you have more choices.
@VulcanTourist I struggle to shut up.
"selectively mute" is the first thing on my list of medical history.
Edit to add: I did try to rely on a notepad but she wasnt acknowledging what I wrote.
I needed her to write back to me, she never did, she would not stop interrupting, and being upset with interrutping, and dammit if she would just use writing.
@VulcanTourist Paramedics strap my hands down to a gurney so I cant exactly write when they are asking me questions like "what year is it?"
took me over ten minutes to recall the answer to the question. My cognitive skills were severely impaired like the last three times I had stroke-like symptoms.
@VulcanTourist She was also vehemitely insistent I did not move my hands around, she referred to it somethin like, "thrusting [my] hands towards [her]". I had given thumbs up as I was trying to communicate her accuracy and inaccuracy when she was speaking about me.
She told me that she has a son with autism to expressed that she "understood", which she really did NOT understand how to accept autism. Instead, tried to supress my autism, ordering me to not move my hands.
She put off ABA vibes.
Face-to-face self-advocacy is often hard for those of us who are divergent.
@VulcanTourist Indeed, and when the recipient is a nurse who has an autistic son.... already with a head full of ideas to supress and boss around autistic people, as if she was into ABA.
Nothing I said registered with her in the end. She marked me off as paranoid and psychotic...
Which I have to wait for an appointment in July with my psychiatrist to wipe that BS dx's off my meedical history.
Just my damned luck to be serviced in the ER by an ABA momm.
@VulcanTourist i appreciate your replies. I agree with you wholly... Unfortunately these options were not available to me, but I did try. She was too much for me to get a sentence out of my mouth. and she was giving me an instruction I could not do, and I wrote down "I cant do what you ask" and I showed her the writing and she poked her head up and continued on her request for me to respect her boundaries and do a thing that I cannot do...
She didnt believe what I wrote, or she didnt read it.
I gotta go back to bed. I've earmarked this for my wife to consider when she's awake later. As NT and a former trauma nurse, she might have some insight.
@Peacebringer735 @VulcanTourist Hello nice to meet you!
The nurse seemed to think she knew what to do, but she was upsetting me with every command/demand/interruption. She seemed to be full of ideas that were wrong for my mental health.
As I drifted off to sleep, I was thinking about your need being comparable to a blind person, a speaker of another language, or an accused criminal: you need a "lawyer" or a "translator" or a "seeing eye dog", an advocate for your needs and rights. It's for this reason (and transparency) that I ask my wife to be present at all my doctor appointments, and on first introductions to that slightly unordinary state I half-joking call her my "seeing eye dog".
I hope that you can glom onto someone who can do that for you. Maybe there's an NPO with the equivalent of social workers who could be called to arrange that if there's no friend or family.
@VulcanTourist @Peacebringer735
I have one, she was missing that evening. I had fell into stroke-like event because I had a meltdown with involuntary head bashing three days before, because I was so upset from my roommate missing, and the head bash was in frustration that was a chain fo frustrations with the missing persons call line only handling voice calls, and would not let me get a return call of a text or email, voice only. I was pissed off at San Diego Police having no accomidation.
@VulcanTourist @Peacebringer735
And my backup Advocate was out of town. I had called my backup advocate that I called to help me call 911 because I could not get my hands to press the buttons 911, but I was able to hit a big dot of my backup and a big dot for calling. It was after 9pm so others were sleeping... I only knew of one person on my phone I could call to be a voice for me, but the nurse was also stubborn with my certified therapist being the person on the phone to validate my words.
@VulcanTourist @Peacebringer735 I was more agitated and had residual restlessness for the next three days.
I cant afford to sue, but I have records that I can sue them. I also cant be properly speaking either. She denied my needed accomidations, disbelieved me, bossed me around, agitated me more, put false dx's on my medical records that declare me to be psychotic and paranoid when I have legit fears that could lock me up and away from my own autonomy with a "hold" put on me.
I want to sue.
Gatekeeper indeed. Hope you get some revenge.
@VulcanTourist @Peacebringer735 Yep. Denied me hand movement to give her a thumbs up, or a shaken head to give her a no (trying to not use my voice which would be interrupted and would interrupt her... visuals do not interrupt speech)... Denied my verbal advocate on the phone, denied reading my hand written notes, she was a trauma reminder and became another trauma.
She put bad dx's on my medical records that I have to have an appointment with my psychiatrist to get removed from my history.
@VulcanTourist @Peacebringer735 And I dont want revenge. I am against revenge. I dont want to hurt people who hurt me, that just spreads more hurt.
What I want to sue for, is for her to not treat people like she treated me, to allow for hand written notes if requested. To recognize that some people who can speak, may need to depend on text or writing to communicate in a fashion that is better for the patient.
I want to sue for accomidations, suing for other people to not be ignored like I was.
@VulcanTourist @Peacebringer735 Writing uses different prts of the brain than speaking does. My controls over my hands are far better than my controls over my mouth and vocal chords... I want to get a dyspraxia Dx to prove to them my difficulty with fine motor controls (fine motors in the throat where the noise is made, fine controls in the mouth where the sounds are formed into language.
I asked for writing.
It's like denying a blind person their braille, or denying deaf their sign language.
That's the sort of revenge that I meant, but the word "justice" didn't seem to fit.
@VulcanTourist @Peacebringer735 fixing a problem. Failure to provide communication accomidations for a person with communication difficulties and selective mutism.
Selective mutism is on my medical history which she chose to ignore.
But with Trump #USpol making "DEI" something bad, and wanting every establishemnt in America to have no DEI, I would then have nothing to sue for if accomidations are not being provided by law.
Accomidations were lacking in the police and at the hospital.
@Peacebringer735 Thank you, it was horrible and I dont want another repeat.
The experience (in addition to three previous similar experiences) has left me with a lot of mental/emotional pain, a lot of "not again" feelings, and a genuine fear of going back to the ER. I never wanted to explerience what I had experienced, and I have experienced the horror more than once. I wanted them to help with my medical concerns but they were too concerned with controlling my behavior.
I dont wanna go again.
If this is caused by the intractable behavior of just one or a few people that are acting as gatekeepers, you do have rights as a person. Go around them, get their boss(es) to recognize their failures and either replace them or make them behave with respect. People in public facing services have an obligation to respect how YOU need to communicate, not according to their convenience.
@VulcanTourist I could not reach their boss because I was not being listened to, she always interrupted after I said like five words.
And I was suffering with cognitive impairments, didnt cross my mind to ask for a different nurse...
but if patterns would repeat themselves, if I had asked for another nurse, her ego was so big she would refuse to get someone else, believing that she was dedicated to giving me care.
She said something about giving care when I told her she was a trauma reminder
Green Roc Thoughts
VulcanTourist
Peacebringer