Edited 22/01/23: Sadly, my colleague's wife's condition has deteriorated to the point where she has near zero mobility, and is likely to need hospis care very soon.

I'm going to leave this thread up, in an edited form, in case someone else can make good use of the information and ideas that people very kindly offered. However, no further replies are needed.

You are more than welcome to link here, too.

Thank you all again x

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Calling out to the electronically minded. It's just possible you might be able to drastically improve someone's life!

I have a colleague whose wife suffers from #ALS. For anyone unfamiliar with this dreadful condition, you can have a read up here: https://www.als.org/understanding-als/what-is-als. Short version is that it's degenerative, cruel and, eventually, terminal.

There are a number of aids that sufferers can use. In this case, a button that can be pressed to summon help when needed. The cruelty here is that the person who needs to use it no longer has the finger strength to do so. [Edit: video removed as it no longer feels appropriate to share].

This is where you might come in. Is there someone out there who can design something better? Something that's soft-touch enough to be useful, but not so soft it causes a bunch of false alarms?

Thank you! x

#electronics #automation #help

What is ALS?

ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. There is no cure for ALS yet.

The ALS Association

@TristanB My first thought is to look into low-activation-force microswitches, but that's because of my background in pinball and arcade stuff, read on only if you think it's relevant.

Microswitches are cheap and plentiful and simple and come in an enormous variety of activation forces. The most sensitive I have ready access to are the ones at the bottom of coin mechs, which can activate from the weight of a falling coin, and then they go up to the sorts used on pinball playfields and videogame control panels, which are designed to stand up to heavy use.

There's also the switches used in mechanical keyboards, which are a *sort* of microswitch, and which also come in a wide variety of "lightness" that range from "Tensing your fingers to press them" to "Tensing to *avoid* pressing them."

However you go, most microswitches provide an audible and tactile CLICK that tells the presser that they've been pressed. Most microswitches don't come with "buttons" per se, there'll just be a small nubbin that interfaces the button to the switch, but if your friend can still find/feel for the nubbin and just lacks strength, then leaving the nubbin bare might actually work pretty well for them.

@TristanB as a short term thing if that's a strictly local alert, a wireless doorbell from a hardware store may do the trick. The base unit plugs in, and the button "external" unit runs off a battery. I used one at my parents' house while their front door was inaccessible due to construction and I believe the button pressure was lighter than was shown here.

If it needs to be connected to that particular device ecosystem it may be possible for someone to replace the switch but will depend on the style - if it's a clicky dome on the internal board it might be trickier but lighter pressure switches are used all the time in things like car remotes.

Finally for longer term a sip and puff system might be worth checking on and give added capability (eg https://orin.com/access/sip_puff/)

Sip/Puff Switch

Sip or Puff on a straw to actuate switches that can be used to control a computer, an Alternative and Augmentative Communication (AAC) device, or a voting machine. The straw can be mounted to a table with a gooseneck shaft and universal clamp or directly to the person with a headset. Sip and puff events can be output directly to a 3.5mm connector or electronically over USB bus as mouse or joystick buttons.

@TristanB @Phyxis my friend Jon Oxer designed this for a friend of his with Duchenne MD. It’s a button that uses a force sensor (like an electronic kitchen or bathroom scale) so one can adjust the press sensitivity. I think he was working on a joystick for wheelchair control also.

https://github.com/superhouse/SuperButton

GitHub - SuperHouse/SUPERBUTTON: Firmware for the SuperButton assistive technology button

Firmware for the SuperButton assistive technology button - GitHub - SuperHouse/SUPERBUTTON: Firmware for the SuperButton assistive technology button

GitHub