Two years ago today I tested positive for Covid. I was fit and healthy and expected to be back to normal in a few days. It's been two years and I still can't walk 50 yards.
The only people who think #LongCovid is no big deal are those who don’t know enough about it.
#MaskVentilateTest #VoteForPoliticiansWhoArentGreedySociopaths
I missed my mother's wake and my friend's entire funeral. I tried to go to my husband's sixtieth birthday party and had to be taken home. I've missed my kids' school events, chances to see friends, god knows how many more simple normal things. It's taken away the job I loved and the pastimes I loved even more.
I don't want to whinge on but I do think there is still a vast lack of understanding of how much this disease can take from you. It's not just "being a bit tired".
Anyway, I'm supposed to make a list of recovery goals. No. 1: get well enough to go out and find Boris Johnson and kick him in the nuts.
(If you're reading this at GCHQ: Yes, that is a literal threat. Just not an imminent one.)
As an American, I was surprised when I learned that British people weren't punching Tories more often.
@eleanorrees
I'm so sorry you're going through this 😔
So many losses to grieve, and then on top of that people thinking it's just being a bit tired.
I've had ME/CFS and orthostatic intolerance since 1990. It sucks.
Sending lots of love ❤️
@eleanorrees Kind of you to say so 🙏
It's nothing compared to the work of people like Tom Kindlon (he's definitely worth following if you don't already) and others.
@ahimsa_pdx Yes he's great!
I find I get a bit overwhelmed if there's too much Covid stuff on the timeline, so I don't follow many Long-Covid-info-tweeters but I do regularly look at the hashtag.
(tooters not tweeters 😂 )
@eleanorrees I feel this so damn hard.
My family are clawing at me to get me to do things with them. It isn't that I want to lose the time that remains with my parents, but I really can't do it, and the insistence that I must makes everything so much worse.
@eleanorrees long covid can be so devastating, and worse because it’s minimised. I wish you all the very best for a full recovery in time.
(I’m at the 13 month mark and have relatively mild LC. Even with that, it’s affected almost every aspect of my life)
I was shocked when a very young and fit looking clerk in my local herbal medicine shop told me that she suffered through Long Covid.
It isn't always "the other guy".
Americans in this thread may find this feed useful or interesting.
Each Friday the total number of Americans killed by Covid 19 is updated.
Each Friday the number of Americans killed in the last week by Covid 19 is posted.
@eleanorrees @JonChevreau It's Long Viral Syndrome.
We've found this helpful.
https://me-pedia.org/wiki/Sarah_Myhill
🍀
@eleanorrees @JonChevreau Partner has had CFS/ME for 25 years with no help from US Standard of Care. Also, our doctor agrees with her.
I think it's five times she's been accused of quackery in the UK and found innocent, BTW.
DH has made great strides following her diet and treatment reccs. Far from the only physician using ketosis, hormone balancing, and zero psychiatric drugs.
The science is on the side of Myhill & Dr. Tim Noakes.
#LongCovid affects millions of people, with varying individualized conditions and severities per person(s).
Treatment options are available.
Consult your Doctor about your options and programs available to you in your area. 👩⚕️👨⚕️🏥⚕️🥼⚖️🚑📃💊
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