dr elmyraSep 22, 2023
Today in I love being disposable and a teachable moment: 50 papers in, there is only research on "what can we learn about #LongCovid from #MECFS" and no research on "how does covid infection affect existing #MECFS patients".
Show threadahimsa

@elmyra There is so little research on ME/CFS at all that it's not surprising.

In the 20 years before the pandemic, there were just 2,007 new scientific publications on ME/CFS vs. 45,000 for psoriasis and 114,000 for Parkinson's.

source = https://news.sky.com/story/how-long-covid-ruined-my-life-from-crushing-fatigue-to-brain-fog-12744444

But, I agree that it's sad / frustrating / infuriating! that researchers aren't looking at how COVID infection impacts ME/CFS patients.

#MEcfs #COVID #LongCovid #Research

How long COVID ruined my life, from crushing fatigue to brain fog

Sky
Sep 22, 2023 at 7:07pmWeb
Show threadApple Annie Sep 22, 2023
@ahimsa_pdx @elmyra Knowing what I know about my own path through this illness over three decades, having gone from bad, to slightly better after a round of antiviral medication for shingles in my 20s, to worse again after stressful life conditions + a poor booster reaction, my calculations are that a Covid infection would trigger another viral reactivation of whatever reservoirs we already have + new post-Covid symptoms. Which is why I'm doing everything I can do avoid it.