Just curious - any one on here using the Visible app for either Long Covid or MECFS? do the numbers match how you feel?
Just curious - any one on here using the Visible app for either Long Covid or MECFS? do the numbers match how you feel?
@p2173 I use it. The numbers haven't really matched for me either, except for two of the worst days of a crash last week where it told me I was trending worse.
That wasn't very helpful deep into the crash but I'm hoping the data they're collecting will eventually let them predict sooner. Or maybe it can only really work for people who are still able to do daily life? I'm close to bedbound most days anyway so there just may not be much change to "see".