Mastodawn

Autistic Book Club Jan 6, 2023

I know that #EDS #POTS and #MCAS often co-occur with #Autism but do any of you have:

It is caused by an overactive immune system which inflames and attacks the joints. You can get it at any age, kids have it.

I used to run every day, then suddenly I could hardly walk.

Not to be confused with Osteoarthritis (brought on by 'wear and tear' in older age).

I was wondering if this is an #ActuallyAutistic thing or a 'me' thing!

@actuallyautistic

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Eowyn Jan 11, 2023

@autisticbookclub @actuallyautistic I couldn't find what those acronyms stand for, can I get a little help?

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sentient water Jan 11, 2023

@eowyncwper @autisticbookclub @actuallyautistic EDS is Ehler-Danlos Syndrome a collagen condition highly prevalent in autistics. POTS is Postural Orthostatic Tension Syndrome it can cause plummeting of BP when changing position. MCAS is Mast Cell Activation Syndrome (I need to do more research into this one myself).

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Carlos Solís Jan 11, 2023

@sentient_water
@eowyncwper @autisticbookclub @actuallyautistic

I very rarely feel dizzy and get static-like vision blur when I stand up suddenly. Gotta check if it is POTS.

https://www.nhs.uk/conditions/postural-tachycardia-syndrome/.

Postural tachycardia syndrome (PoTS)

Find out more about postural tachycardia syndrome (PoTS), where your heart rate increases very quickly after getting up from sitting or lying down.

nhs.uk

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sentient water

@csolisr @actuallyautistic @eowyncwper @autisticbookclub You very rarely...? 🤔 it's usually a symptom of EDS but can be a bit elusive to DX. I think a tilt table test is needed but I have yet to get one. As much as I love the NHS they're not very aware of EDS so you might want to do a deep dive elsewhere.