Nick JeffreysEveryone on here will be way ahead on this, but just to say my daughter (27, 2 years #LongCOVID ) just started using the new #visible app from #makevisible.com and is finding it really helpful making her aware of what things do and don't exacerbate crashes
Fritz@nickjeffreys What do we know about the privacy of the data collected? Sorry for being pessimistic.
@fritzt I haven't investigated this - all I know is that the company was founded with the involvement of people in the LC community that I trust and have followed for years. I don't know what the business model is, how or if the platform will be monetised. All valid questions but also sometimes there are good people doing good things. (BTW I am in the UK where human rights are becoming a thing of the past so I understand the concern)
@nickjeffreys thanks for the thoughtful answer. It could be that the privacy aspect is subordinate to the need for data and solutions for many.