Courtney🤸‍♀️ WyrtzenI've managed to string together some sustainable recovery from #LongCovid after 29 months of debilitating symptoms. It's been a multifaceted and complex journey. At month 14 I was hopeless & barely functional. Step by step, I've gotten some life back though nothing is the same. Hoping to connect with other #pwLongCovid #AMA @longcovid
Tim Gent@ItsJustCty @longcovid that's great to hear. What would you say is the biggest influence on recovery? Pacing, medicine, attitude or just time to recover?
@tgent_fens @longcovid Pacing has been huge but to even be able to figure out pacing I had to go on a strict Low Fodmaps, NO Histamine diet (this allows for only about 16 foods). Then, with that little bit of relief from body aches, I did 3 mos of in-home physical, speech, occupational, and neurological therapy (I had to take leave from work for this, thank you #CARESact), then building sloooowly from there some important med interventions (will private DM this), after EECP *huge* improvement.
@tgent_fens @longcovid THat is the bare bones summary of my sustained recovery from #LongCovid , lots of stops and starts along the way. I mask up against #COVID and #Allergens because of #MCAS. I AM in a #LongCovid clinic & have insurance, this helps a LOT.
@tgent_fens @longcovid Re-reading my posts I see I got some things out of order, ugh #LongCovid #brainFog, the timeline jumbles in my brain but the milestones are solid, just timing! #pwLongCovid #pwLC #COVID19 infection in June 2020, no hx, don't remember 1st 3 months, could not get ANY doctor (except one curious pulmonologist #thankful) to help until August 2021, #LongCovidClinic only then was I able to turn a corner at all and OT/PT/ST + critical rx internevtions was that fall 2021.
@ItsJustCty @longcovid thanks. I'll look through this. 5 months in myself and quite a bit I still need to read up on!
@tgent_fens best wishes, and go as slow as possible! Take care.