(No offense intended: this surely comes right from my ignorance. Can't help bring sorely sceptical, though)
We have just updated our portal. You can learn a bit more about the changes in this "test" page:
https://storage.googleapis.com/rarediseases/latest.html
We have been thinking about writing a bit about our history how we became a rare disease company, and we made this small draft...
https://raredisease.s3.eu-west-2.amazonaws.com/blog.html
Do you find it insteresting? Should it be included in our main site?
Yes, this is a bit tricky..., but sometimes you need this to be on the top:
http://search.bt.com/result?p=site%3Amendelian.co&Location=Location&channel=Test1