Possibly important info for #SJIA folks and others on #Tocilizumab

https://www.notstandingstillsdisease.com/2023/06/04/tocilizumab-hypofibrinogenemia/

AMAZING news for those of us with Systemic JIA, Adult Onset Still's Disease, or recurrent Macrophage Activation Syndrome!

https://www.notstandingstillsdisease.com/2023/04/28/emapalumab-mas-remission/

#SJIA #AOSD #MAS #Rheumatology #PediatricRheumatology

Okay #SJIA adults or #rheum docs that I know -

The fellow I'm seeing is not understanding the need to have SJIA-specific meds. Normally, I'm cool with seeing students BUT it's been three months of spacing out the last 2 weeks of anakinra I had while I wait on insurance to approve (which the office had not been on top of).

Fevers are coming back and it's A Lot.

Any #Ohio adult rheumy recs? Thanks in advance!

I am 👀 for post-doctoral fellows to join my team.

We study immunologic effects of novel genetic 🧬 mutations that we identify in people with inflammatory diseases like #sJIA #AOSD.

We are seeking immunologists to build their careers unraveling disease mechanisms with us.

Wish I was attending #ACR22 this year but, with my #SJIA turning 29 tomorrow, I figured I'd have enough reflection on all things arthritis

I'll be honest and say I never thought I'd hit my mid-30s, but I'm so very glad that I have