Webpage live for the

10th UK Patient Reported Outcome Measures Research Conference
https://sheffield.ac.uk/smph/events/10th-uk-patient-reported-outcome-measures-proms-research-conference

The conference is an opportunity to reflect on progress in the past decade and to explore the future of PROMs in practice, policy, and research.

Going back to where the journey started in 2016:
Sheffield #SCHARR
23rd June 2026

#HRQOL #PatientCentered #ISOQOL

Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOL

This is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )

#HRQL #PatientCentered

Great to see @hudsongolino.bsky.social presenting on AI-GENIE at #ISOQOL

Firstly, the community hears and uses the words "the #PrePrint is out" too rarely, and here it is:
https://osf.io/preprints/psyarxiv/fgbj4_v2

Second, it is great to see the strong theoretical underpinnings of exploratory graph analysis making their way into promising applications
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0174035

#Psychometrics #HRQOL

Roughly 2 weeks left to submit to JPRO's #SpecialIssue
"Patient and Public Involvement and Engagement"
https://www.springeropen.com/collections/PPIE
#PPIE

The aim is to capture the use of Patient and Public Involvement and Engagement (#PPIE) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.

#ISOQOL #HRQOL #PatientCentered #Psychometrics

The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
https://www.isoqol.org/bridging-the-gap-a-user-friendly-tool-for-evaluating-differential-item-functioning-in-patient-reported-outcome-measures/

A related methods paper by the team:
https://link.springer.com/article/10.1007/s11136-023-03560-5

#Psychometrics #HRQL

When you leave a job, there is always unfinished business, stuff that could have gone better etc.

Therefore, I am glad to see that "Quality of Life Research" has passed 2,000 submissions this week, which makes 2024 (so far) the year with the second most submissions (after 2020) in the history of the journal.

Thanks to authors and reviewers supporting us! 🙇

#ISOQOL #HRQL #HealthEconomics

Earlier news post on paper awards and usage:
https://mastodon.social/deck/@jrboehnke/113629324934342255

Read about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research":
https://www.isoqol.org/news-from-quality-of-life-research-112024/

The last annual update I will be involved in... 😅👋

#ISOQOL #HRQL #HealthEconomics #Psychometrics
#EQ5D #COSMIN #PROMIS

7/x Leah took the last straw the audience was holding on to:

No, even when thinking about clocks and time, ongoing coordination is an issue. There is no #GoldStandard for time, its #measurement is under constant development.

#PhilosophyOfScience #ISOQOL