๐๐ผ๐ต๐ฟ๐ถ๐ป๐ด-๐ข๐ฝ๐ถ๐๐ ๐ฆ๐๐ป๐ฑ๐ฟ๐ผ๐บ๐ฒ (๐๐ข๐ฆ) ๐๐๐ฎ๐ฟ๐ฒ๐ป๐ฒ๐๐ ๐๐ฎ๐ - ๐๐ฝ๐ฟ๐ถ๐น ๐ฒ
Today, we stand together to raise awareness about Bohring-Opitz Syndrome (BOS), a rare genetic disorder affecting fewer than 200 people worldwide. BOS is caused by a mutation in the ASXL1 gene and can lead to serious health challenges including feeding difficulties, respiratory infections, developmental delays, and more.
On this day, we honor the strength of families facing BOS, support ongoing research, and educate the public and medical community to improve care and understanding.
Join us in spreading knowledge and hope for those impacted by BOS.
๐ Wear gold and denim today to show your support!
#BohringOpitzSyndrome #BOSAwerenessDay #RareDiseaseDay #GeneticDisorders #SupportRareDiseases #BOSFoundation #RareDiseaseCommunity #GoldForBOS #DenimForRare #FightBOS #SCABPharmacy